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1 month ago
My life with Fibrous Dysplasia
My first video kind of nervous.
de6an • 762 views
mistresscharlie
commented:
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1 month ago
Pregnancy update
Wanted to share with the online FD community!
kramsey2006 • 71 views
mistresscharlie
commented:
so cute! we all stand together as an fd community! I am in Texas and had it on my face...had a couple surgeries almost 10 years ago but then was left to deal with it on my own. I am almost 30, still trying to figure out my life in dealing with fd but my faith has helped. Thank you so much for ...
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1 month ago
Tami's VLOG: Fibrous Dyplasia 3
FAQ Video about Fibrous Dysplasia 11-25-09
Kat's FD Channel: http://www.youtube.com/user...
Mayo Clinic's FD Page: http://www.mayoclinic...
lestatsduchess • 391 views
mistresscharlie
commented:
Tami I love you and your friend Kats videos...I want to make one about my fd story also. I had it on my frontal cranial bone. My name is Cherie, I am about to be 30 and was diagnosed at 21.
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1 month ago
Fibrous Dysplasia Post Surgery
Surgery on June 12th, 2009. This is a post surgery video of me after having what was to be a simple surgery.
lestatsduchess • 1,324 views
mistresscharlie
commented:
I remember this from after my fd surgeries. I haven't had to go through this in a few years (all thanks to God for keeping me well)...I will be praying for you to continue healing..hope you are doing much better now considering this was a couple of years ago.
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1 month ago
Fibrous Dysplasia and Me
Me talking about Fibrous Dysplasia, a rare bone disease that I have in my face.
lestatsduchess • 7,166 views
mistresscharlie
commented:
yes those who have this on the face do have a social pain to overcome, also possible identity issues, I had many emotional issues to overcome dealing with the disease in general
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2 months ago
Sara's Miracle
Sarah has a rare bone disease that caused one of her legs to be two inches shorter than the other. One Sunday morning God miraculously grew her leg...
livingstoneshawaii • 55 views
mistresscharlie
commented:
I love this video. The Lord Jesus healed me of fibrous dysplasia through my doctors after a couple of surgeries. I love hearing other peoples testimonies. God is good, God is love.
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2 months ago
FD updates, baby updates
I got a video response that was FANTASTIC and it caused me to film, even though I've been sick. There's a rant in there about doctors and healthca...
kramsey2006 • 123 views
mistresscharlie
commented:
Love all your videos. Gonna try to find the one you were talking about. I feel so alone having struggled with fd because even the doctors dont know about it. Your videos help me understand that I am not alone. Thank you.
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2 months ago
Fibrous Dysplasia diary
An extremely rushed update as to how I am doing with managing my FD and apologies to those who have emailed me and have asked for more vids.
kramsey2006 • 66 views
mistresscharlie
commented:
Hey lady...love your videos. I am about to turn 30 and was diagnosed when I was 21. I had it on my frontal crainal bone. Had two reconstructive surgeries. I try to live my life normally but I feel what you say about being told you have it and left alone to deal with it. I still have lots of ...
I am 30 and was diagnosed with fd of the frontal cranial bone at the age of 21. Had a couple surgeries..doing better the past few years...just wanted to say thank you so much for posting. Your video helps me to not feel alone.