Nate Lee
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Palantir Holiday Party 2011
miershpedankl
84 views
Flip book at Palantir Holiday Party 2011!!
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Emily @ therapy doing neck exercises (Spinal Muscular Atrophy)
miershpedankl
277 views
This is incredible. Emily is wearing her TLSO and pulling her head back upright all on her own. Even though she has Type I Spinal Muscular Atrophy (SMA).
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Daddy/Emily Ukulele duet
miershpedankl
529 views
Just having a little fun :)
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Cure Machine - Extreme Van Makeover
miershpedankl
449 views
The Mustang Club of Maryland honored Emily today with a "Cure Machine" event - a local Extreme Van Makeover, if you will. There was a tremendous turnout, incredible work, a...
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Emily holding head up @ PT
miershpedankl
721 views
This is pretty neat. We think that PT and maybe Turmeric has increased Emily's strength and ability to hold her head up and support her trunk. She COULD NOT hold her head u...
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Emily's bedtime animal throw-down
miershpedankl
678 views
If we position her just right she can swing her arm up to knock them down. She thinks it's hilarious :)
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Lightning storm
miershpedankl
62 views
Crazy lightning from approaching storm. (iPhone)
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Doxology (Romans 11)
miershpedankl
1,618 views
Teaching Andrew Peterson's "Doxology" to our congregation.
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Fiona and Annabelle :: Christmas Songs
miershpedankl
289 views
Fiona and Annabelle singing a couple Christmas songs they wrote. :)
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Oxygen setup in Emily's Room
miershpedankl
2,378 views
We use a concentrator, and have back up oxygen canisters, for traveling. No fumbling around, very easy and reliable set up.
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About Nate Lee
Thanks for visiting our videos! Nearly all of them will be of our kids and mainly our youngest who has a disease called Spinal Muscular Atrophy (SMA). The movement you see in these videos is essentially all that she can do on her own. Visit our site for more information: www.hopeforemily.com
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Thanks for visiting our videos! Nearly all of them will be of our kids and mainly our youngest who has a disease called Spinal Muscular Atrophy (SMA). The movement you see in these videos is essentially all that she can do on her own. Visit our s...
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