lysofamilyvideos's Channel

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About Lyso Family Videos

If watching these videos does not give all of us the drive to fight as an army and crush the mountain that is blocking us from a cure for lysosomal disease, then I dont know what else to say.
Watch these videos, and cherish these familys special memories and times with their loved ones affected by lysosomal disease.

If you are or know someone affected by lysosomal disease, please add us as your friend.!!

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hideandseek.org

Created by

lysofamilyvideos

Latest Activity

Aug 8, 2008

Date Joined

Aug 8, 2008

About this user

We at the Hide and Seek foundation are on a mission. A mission to see into the future - a future without lysosomal disease. It affects those in age from infants to adults and take lives of those affected daily. We want to raise awareness of lysosomal disease is, we want to educate the medical communties, and bring light to the very dim tunnel those affected live in. With over 50
different disorder types and the stats that every 30 minutes another child is born with Lysosomal Disease, does it still sound rare??

Join our army to move forward stopping lyso disease in its tracks.....together as one, we will win this battle. Visit our websites below......

Alot of these videos we have listed on this channel we have found from just searching around youtube, its amazing how many are in this world affected by lyso disease - yet its still called rare. Thank you to those that have sent in videos to us, and please keep sending them -- we are going to YELL and SCREAM lysosomal until there is no one left who hasnt heard about it!!

Check out our playlist section - all videos are there by disorder type.

Country

United States

Occupation

medical research, medical awareness, medical education, family outreach, social networking, community awareness,

Companies

The Hide and Seek Foundation

Interests

www.myspace.com/lysosomalfamilies
www.myspace.com/lysowhat
www.youtube.com/user/Lysosomal

PLEASE BE SURE TO ADD US AS YOUR FRIEND!!!!!

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