llohin's channel
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1 year ago
Enna at the hospital 253 donations can be made at any ATB branch for equipment and awareness.
Enna has plenty of Equipment for variuos uses. This is her life as she knows it. I will explain the use of her equipment sometime down the road.
llohin
commented:
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1 year ago
How we were shown how to do Enna's trach changed.
This is our lesson number one on Enna's trach change. This an idea of how trach's are changed. This lesson is for on how to change Enna's trach so ...
llohin
commented:
There are many ways for children to communicate ! Our daughter has muscle weaknes Spinal muscular atrophy , which is the number on genetic killer in infants , so her voice is very weak so we have never had to cross this path ! She is starting to use and eyegaze ! But I do know that you must be ca...
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She has spinal muscualr atrophy type one , the number one genetic killer in infants and about 1 out of 36 people are carriers of the gene without knowing it !