lilhyperfingers's Channel

7 subscribers

37,660 video views

lilhyperfingers uploaded 9 months ago

8:49

Azer bolus

58 views
lilhyperfingers uploaded 10 months ago

8:24

Azer Talking about CF

52 views
lilhyperfingers uploaded 10 months ago

1:11

IMG 0045

35 views
lilhyperfingers uploaded 10 months ago

0:50

IMG 0044

42 views

About lilhyperfingers

azerscfwebsite.com

Created by

lilhyperfingers

Latest Activity

Dec 29, 2011

Date Joined

Oct 10, 2006

About this user

Our son Azer was born on October the 6th, 2003. He was so perfect. Those tiny feet and hands. He was born with a lot of hair too. He was born in Colorado. In Colorado, included in the newborn screening for diseases, they did the mandatory test for Cystic Fibrosis. We had no idea what Cystic Fibrosis was at the time.

Soon after Azer was born, he started to loose weight. In only a week he had lost a pound or more. He also had a cough. The pediatrician didn't know why. When the results finally came back from the newborn screening, they said he might have CF. So they sent us off to another place to get a sweat chloride test. It turned out to be positive.

Even though we felt devastated, we soon came to learn that the diagnosis of CF is no longer a death sentence thanks to the new therapies and medications available today.

The average age of survival today is 35 years! Not many years ago, children with the disease died as children. The average age of survival keeps climbing. It does help to inform people about CF and the earlier the diagnosis, the better. I believe that it should be mandatory in ALL states to test newborns for CF. The Cystic Fibrosis Foundation is working hard at finding a cure, and also is developing new drugs to help keep improving the quality of life for people like Azer.

Please consider donating $1 to help find a cure for my son's disease.

http://www.cff.org/great_strides/LydiaIrizarry

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lilhyperfingers

lilhyperfingers uploaded 9 months ago

Azer bolus

lilhyperfingers uploaded 10 months ago

Azer Talking about CF

lilhyperfingers uploaded 10 months ago

IMG 0045

lilhyperfingers uploaded 10 months ago

IMG 0044

About lilhyperfingers

Created by

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About this user

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