leighxmac74's Channel
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Ankylosing Spondylitis Stand Tall
Haunted Bunny Rabbit
Renovating my huge back garden
 
AS Story
You're Not Alone
 
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leighxmac74
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Profile
 
Name:
Leigh
Channel Views:
854
Total Upload Views:
28,142
Age:
37
Joined:
Apr 3, 2008
Latest Activity:
1 week ago
Subscribers:
17
About Me:
 
I'm a 37 year old female, but sometimes i feel i have a body of an 87 year old. I have a life altering Degenerative Bone & Auto immune Disease called Ankylosing Spondylitis (A.S.) AKA Bechterew and Marie Strumpell Disease.

Ankylosing means fusing together. Spondylitis means inflammation of the vertebrae. A.S relates to an inflammatory condition which produces new bone and leads to fusion. It's a chronic Auto immune disease which affects the bones, eyes, lungs, bowel and heart. It can fuse the hips and spine together. It is a disease that unless you have it you will never understand it or the impact this has on a persons live. There is no cure so we need to spread awareness and help others with AS and to help to find a cure.

There are also a lot of other complications that us ASer's have to go through with A.S. I also have Dactylitis, Sacroilitis to go with it.

A.S is a disease that unless you have it you will probably never understand it and how much impact this disease has on a persons life.

I try my best to spread Awareness of AS so i can help other AS sufferers like myself, and to help find a cure!

Any ASer's who would like to add me as a friend, please do :)
It's better to Stand Tall and face this together, than to stand and face it alone.

Please forward my video to spread awareness.

I am a huge fan of the British Band "The Enemy" & also the Welsh Band "Lost Prophets"
Hometown:
Leeds
Country:
United Kingdom
Occupation:
Jeweler/Designer Artisan
Interests:
My children, My pet bunnies, Socialising, My friends, AS Awareness, Art, Crafts, Jewellery, Music, Gardening, Reading, Movies, Ebay, All health permitting of course! ;)
Movies:
Horror Movies: Frontier's, Martyr's, Mum & Dad, The Girl Next Door, Blood Creek, Baby Blues, Wicked Little Things, Eden Lake, Saw 1-6, Insidious, My Bloody Valentine 3D, Wolf Creek. Romantic Comedy: The Holiday, Serendipity, A Lot Like Love, The Notebook.
Music:
The Enemy, New Order, Bad Lieutenant, Embrace, Keane, Funeral For A Friend, Lost Prophets, Foo Fighters, 30 Seconds To Mars, James Morrison, Muse, The Verve, Richard Ashcroft, The Kooks, Aqualung, The Killers, Pendulum,
Books:
Phsycology, self help, self healing, non fiction, true crime
Channel Comments
rizah007 (3 months ago)
antg71 do you use TNF Blockers?
Do any of you people use TNF Blockers?
leighxmac74 (9 months ago)
Thankyou very much for your lovely comments, they are very much apprieciated. I'm so glad my video makes you feel better. For those of you who have not yet had a diagnosis, Do not give up, it takes approximatley 10 years before anything shows up on xray, and before most doctors can prescribe the correct medication.

Keep fighting & keep smiling & most of all, Stand Tall :) Leigh x
jonsverre1979 (1 year ago)
Thank you so much for making the 'Stand Tall' video! It's fantastic!
I've recently been diagnosed with "probably ankylosing spondylitis", but i've had symptoms of spinal pain, stiffness, low heart rate and fatigue for about 8 years.
Anyways: When I feel down because of pain and fatigue, I often play this video and it always makes me feel better. So thanks a lot!!!
Jon, Sarpsborg, Norway
rizah007 (1 year ago)
I have AS (Bechterew) to. It can ruin your live if you don't fight it. It altered my course of live when it started (I was 17 then). At an age of 26 I said enough is enough. So here I am. Need to stress out that exercise and eating fruits (specially apples, melons) will help you (me) a lot.
antg71 (2 years ago)
I'm a fellow AS-fighter as well.
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