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Bedtime Songs
kooklaG
93 views
Each night as I got my son ready for bed, Benjamin and I had a ritual we followed, one of dancing and lullabies. I promised to pick him up and dance with him, if he promis...
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Lady Gaga - Paparazzi guitar and vocal cover
kooklaG
233 views
My and my daughter's cover of Paparazzi by Lady Gaga. Recorded it just for fun- all rude comments will be deleted =] Thank you!
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Myotubular Myopathy Family Conference Web Stream
kooklaG
917 views
pictures of families affected by Myotubular Myopathy and Centronuclear Myopathy
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LeeAnn-in-the-box!
kooklaG
1,795 views
LeeAnn folding herself into a box
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Ben on Sit&Spin 1- 2004
kooklaG
186 views
Ben riding on the Sit-N-Spin! He was just over 2 years old here. This was when we kept him off the vent during the day.
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Ben rolling-video- 2004
kooklaG
67 views
Ben rolling while on floor. He was about one and a half years old here.
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Ben on tricycle- 2004
kooklaG
62 views
Ben when he was one and a half years old, sitting on his tricycle
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Ben clapping his hands- video-August 2003
kooklaG
68 views
Ben clapping his hands. He was wearing an orthotic helmet at the time.
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Ben holding his head up for the first time- age16 months- January 2004
kooklaG
58 views
When Ben first held his head up, I happened to get a short video of it!
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Dancing to DJ AM
kooklaG
1,173 views
Families of children affected by Myotubular Myopathy enjoy some much-needed respite (and fun) at a fundraiser for the disease!
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