jym092000's channel

jym092000 commented 10 months ago

3:55 Add to

The Scary Parts Of HD

Huntington's Disease gets scarier as Karli almost lost her battle.

15,311 views

jym092000 said:

@locksdown2008 I couldnt have stated it any better thank you!

• 3:55 Add to

  The Scary Parts Of HD

  Huntington's Disease gets scarier as Karli almost lost her battle.

  15,311 views

  jym092000 said:

  @dantescritic OUCH! really who manages science?DO YOU?and please do exsplain your defenition of what determines anothers value to society,and why your reasons makes them valuable or not!!! knowlege of GOD doesnt dismiss science but helps one to be less angry at the short comeings that exsist in t...

• 3:55 Add to

  The Scary Parts Of HD

  Huntington's Disease gets scarier as Karli almost lost her battle.

  15,311 views

  jym092000 said:

  @dantescritic I can apreciate what you share about needing faster cures and how the exsisting system is hindering this.This young lady lived on to see another x-mas BUT she has since left and SHE did NOT share your views on heavan,she spent a lifetime sharing just the opposite!people who make vi...

• 3:55 Add to

  The Scary Parts Of HD

  Huntington's Disease gets scarier as Karli almost lost her battle.

  15,311 views

  jym092000 said:

  @dantescritic this little girl and her battle is NOT a snuff film!if its too much for you to watch then dont watch it that simple however the world we live in does need change so that the many children who endure this hardship have a fighting chance.Insurance execs are not the only concern.This f...

• 4:07 Add to

  The Real Huntington's Disease The Sequel

  Me, my little sister, my dad, and my older sister all have a terminal brain disease called Huntington's Disease. It slowly takes away all of your a...

  25,802 views

  jym092000 said:

  xxxAlphaxxx5...she didnt lose all her abilities at age 11 but yes she was completely dependant on others for all her care and needs and even when she could no longer speak or walk or use her hands ,age 12,she still found a way to share her needs and thoughts and she was still quite aware.

• 4:07 Add to

  The Real Huntington's Disease The Sequel

  Me, my little sister, my dad, and my older sister all have a terminal brain disease called Huntington's Disease. It slowly takes away all of your a...

  25,802 views

  jym092000 said:

  @xxxAlphaxxx5 she passed away 1 year ago at age 13..the young gal who made this film has now begun a similar battle it has been her wish for others to know about the kids with this disease and the whole reason she made the films she has!

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jym092000 commented 1 year ago

2:13 Add to

JHD Vlog 5

camcorder battery died so heres the rest of the video, dystonia like youve seen can last like a half hour and it usually leads to a seizure 7 minut...

392 views

jym092000 said:

the cough is assessed as her swallow muscles will not react properly dependant upon how awake her body is or quickly its processing???idea to minimize it by alerting her body it needs to wake up and swallow

• jym092000 commented 1 year ago

  2:13 Add to

  JHD Vlog 5

  camcorder battery died so heres the rest of the video, dystonia like youve seen can last like a half hour and it usually leads to a seizure 7 minut...

  392 views

  jym092000 said:

  jacey now wears a timex heart rate watch with high and low settings to help give us warnings that a seizure or movment attack is coming on and or watch for those darn blackouts that occure less frequently as she progresses

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