About this user
about me, well I was just like you hard working looking forward to the weekend, loved going out and having a few and dancing, socialize, laugh watch football at a bar in the winter. One day I had both of my feet that hurt and the pain just would not go away, so I went to a foot Doctor and he said you have tarsal tunnel (like carpal tunnel but it's your feet OUCH) so I went in for the surgery and when I woke up in the recovery, I felt like my feet where chopped off, so down the line 10 months exactly I went back in fr surgery because a new surgeon siad I had a good chance of having this fixed, so I went back in this time it was called tripple nerve release, I was cut up by my knee, on top of my foot and inside of my ankle again, then 8-10 weeks later I had the other leg done, let me tell you never have nerve surgery done I was noe 100% disabled with severe nerve damage, the pain from nerve damage is undescribable remember that movie mysery and the woman comes in and beats the guys legs with a bat! that is exactly what I felt like 24/7, here I am three years and four months later and I am on 600mg morphine and six other meds I have seen many Dr's in Boston and one of them was a Neurologist actually he was the Director and he said Janice you are so chopped up, there is nothing I can do for you now, then he said did anyone send you for a EMG with a neurologist before all this surgery?, I said no, that is when he got upset and said these Dr's are not supposed to do any nerve surgery until they send you for an EMG, how would I know, believe me I do not have enough room here to tell you all the mistakes the Dr's made, but because of them I am disables, they took my whole life away when I was just beginning to live my life after raising two girls and my youngest just moved out after college, so after trying to find help for all this my surgeon faxed my medical records to the Dellon Institute in Baltimore MD to a Dr who is also the Professor of Georgetown University and he read my records and said there is nothing I can do for her, now this Dr. was the one who taught my surgeons how to do this surgery so he is top notch, if he can not help where do I go, I have read all abour RSD and CRPS and yes some people can be treated for this with nerve blocks or nerve stimulator and meds well they tried all this on me and nothing worked, see what I have there really is no name for it, all I know is I am in bad shape and in severe pain, I have done some blogs and sent the info to friends on myspace and not one person sent a reply or comment, I am on a web site that I can chat with people in the some what same boat and a girl from the UK has nerve damage from surgery like me but just one side and she said she can not find any help, we need research so bad on this my god people's bodys are being so damage from surgery and it's the Doctor's who are doing the surgery, where is all the help for the patients, why is there not one thing on tv, I see charitys for every thing in the book except for this, it really needs a name, I do not just have RSD or CSPS I can not believe I live in a world that has no help for a condition a surgeon put me in, how can I bring awareness to this?? I figured well if I can not get help I will take to the web and hopefully by spreading the word something would come up so this is why I am here, I started a page and it is foundationneed.blogspot.com if there is anyone out there that has any advice on what I should call my blog to bring more attention to it, please let me know, also just any advice you can pass on to me, what would you do if this happened to you?? honestly when I went in for surgery not one word was ever mentioned that this could be a possibility that this would happen to me, it really sucks because everyone gets to move on with there life and mine is ruined, my surgeon is still operating and livingthere life, I can not even tell you what it is like to have your everyday living taken away from you, or what it is like to be in so much pain that you can not even walk to the bathroom five feet away, and what all the meds do to your body, without excercise and meds you can not go to the bathroom there is so much more behind just being disabled, all the years growing up seeing people in wheel chairs would scare me to look at them, I could not imagine what there life was like, now I know WOW this happened to me, but my god if you are going to make me disabled please get me the help I need
Interests
my main Interest now is to tell my disaster surgery story to the world, if this happened to someone famous everyone would know about it, so this is my main goal, it is a must tell story, so it does not happen to anyone else. we as people putting our life into the Doctor's hand, must have some rights.
