About this user
If you are anyone you know has this very rare disorder please watch these videos. MG is very frustrating to those that have it as well as their loved ones. Each case varies and it is strange to see someone seemingly normal one day, hour, minute, then to see them barely able to breathe or not able to keep their eyes open or head up.
My treatment is just starting and it took me nearly two years to get officially diagnosed. If you have other or different experiences please share with me and others. Not all of the symptoms/ complications I have are due to MG, but MG seems to affect my healing from a car wreck and I possibly have other conditions related to MG but cant confirm yet. I am not a Dr or in the medical field. I have learned a lot from Drs but cannot give medical advice.
Some of the symptoms I have may shock you due to my age. It is not my attention to scare anyone, just educate.
I want to help educate those in need by sharing my experience with MG. Please reach out to support groups and find a good Dr. Dr's are a frustration as they usually do not understand this disorder and try often to take away a diagnosis or diagnose some other ailment as the culprit.
If there is anything I can do for you for support, please contact me.
Take care and be brave will make it through together
Age
37
Hometown
Fresno
Country
United States
Occupation
Currently I'm out of the rat race because of a work related injury
Interests
You know what I used to love to cook it was one of my many passions before I knew about my disoder, now I have my eyes set on helping others that have this.