FIRST
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1 month ago
An Introduction to FIRST
This 2-minute video appeared on the HD Scoreboard at Citizens Bank Park in Philadelphia, PA on May 4, 2011 when the Phillies played the Washington ...
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2 months ago
CBS Super Screen Video-Times Square
FIRST has the opportunity to show a brief advertisment on the CBS Super Screen near Times Square in New York. It will show 18 times each day betwe...
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9 months ago
FIRST visits the Today Show-2011
FIRST staff and volunteers traveled to the Today Show studios to promote Ichthyosis Awareness Month in May 2011
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1 year ago
Butterfly- Jackson's Story Trailer
"Butterfly: Jackson's Story" tells of the inspiring story of Jackson Hollingsworth. Born with a variety of complications, including the skin diseas...
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1 year ago
Greenwich boy is 1 of 8 in the U.S. with rare skin disorder (2009)
Randy Saunders is one of 8 Americans diagnosed with ichthyosis en confettis, characterized by dry, scaly, red skin with white dots. Randy does not ...
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1 year ago
Butterflies: The Children of Ichthyosis
This is the full length video created by the Foundation for Ichthyosis & Related Skin Types, Inc. in 1998. Designed specifically with children in ...
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1 year ago
2010 Foundation for Ichthyosis Family Conference
An educational, inspirational, and uplifting weekend for all who attended. Provides families affected with ichthyosis an opportunity to meet one a...
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2 years ago
The FIRST Story-Part 2
A video introduction to the Foundation for Ichthyosis and Related Skin Types, an organization dedicated to educate, inspire and connect those touch...
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2 years ago
The Foundation for Ichthyosis Story-Part 1
A video introduction to the Foundation for Ichthyosis and Related Skin Types, Inc. an organization dedicated to educate, inspire, and connect those...
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About FIRST
The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is a national nonprofit foundation. Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
FIRST provides information about ichthyosis through our website, www.firstskinfoundation.org, via printed publications, our quarterly newsletter, and through our lobbying and advocacy efforts. Our signature event, the National Family Conference, provides attending families an opportunity to forge unforgettable connections with each other and to consult with leading medical experts. FIRST also hosts smaller one-day regional meetings.
The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is a national nonprofit foundation. Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocac...
