famc17's Channel
 
Video #6: Rose famc17 - 175 views - 2 months ago
Another Update - More than one year after starting perispinal etanercept!
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Video #5: Update on Rose March 09 famc17 - 281 views - 3 months ago
My Mom Rose has been getting the Enbrel for Alzheimer's Treatment since March 2008. In July 2008, and again this last Feb 2009, she had major surgeries. Most AD patients never quite recover from such set-backs, but Mom is doing OK. Her best point was right before the surgery in July 08. She was set way back since we had to stop the treatments while she was in the hospital, and because of the physical problems. We started up her treatments again, and she came back to us, not quite as good as she was in June 08, but still better than she was before we started the treatments in March 2008. We are continuing the treatments, and she is definitely still maintaining her abiltiy to talk, eat, laugh, and just enjoy the company of her family.

Enbrel for Alzheimer's, Perispinal Etanercept is an off=label treatment so insurance and medicare won't pay for it. More and more doctors are being trained every month, and more patients are being treated every week. Our hope is that enough people come forward to share their experience with this treatment, so that the FDA will take a serious look at it. This treatment is controversial, and there have been many stories regarding the doctor and the pharmaceutical company that won't back this treatment. No matter what anyone says, this treatment has now helped over 100 patients and the numbers are growing. Please look past the controversy and investigate this for yourself and your loved ones. It doesn't work for everyone...nothing does. But, I believe the success rate is at about 75 - 80% which is miraculous for this disease. It can improve some of their cognitive abilities, then help maintain them...hopefully for the rest of their lives. The treatment has only been given for a little over four years now, and some of those initial patients that are still receiving the treatment are still maintaining.

Please see Dr. Tobinick's website for more videos:
nrimed.com/video1.html

Sincerely,

Felicia McColl
famc17@yahoo.com
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Join Mirandas wow The UNDERWORLD chrissomx12 - 12,563 views - 1 year ago
Join The UNDERWORLD Today, this video is just showing abit of The UNDERWORLD, what it is about and what is within it
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Alzheimers miracle drug revealed itnnews - 1,028 views - 1 year ago
Alzheimer's experts have cautiously welcomed a revolutionary American treatment which is being used to help patients.
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Video #2 Enbrel Update on Rose - She's singing again! famc17 - 2,659 views - 1 year ago
(Sorry about the blurry text, I'll re-do it later)Mom used to sing all the time but she stopped over a year ago. On the way home from her third injection, she heard "over the Rainbow" on the radio, and started singing! Quietly, shyly, hesitant but she was singing. Anyway, since then, I've been able to get her to sing occasionally with the radio in the car. But today (After 6 injections) for the first time in years she actually chose to join in at home! I ran and got my camera and started taping...I am very very happy.
Enbrel works...why haven't the experts looked back into this for others? Aren't they supposed to be on our side?
I hope my videos give hope to many of you caregivers out there in desperation. The word is getting out, and doctors are being trained. Contact the INR to find out if there will be a doctor in your state soon. Some states so far are NY, TX, MI, FL and IN. Those are the only ones I know for sure right now.
INRWebsite: http://alzheimerbreakthroug1.r eachlocal.net/
A message board regarding this Treatment that caregivers have been responding on:
http://alzheimers.infopop.cc/e ve/forums/a/frm/f/762104261
Enbrel for Alzheimer's Thread
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Another Update - More than one year after starting perispinal etanercept!
 
 
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famc17 uploaded a new video (3 months ago)
My Mom Rose has been getting the Enbrel for Alzheimer's Treatment since ...   more