ergiburton's channel
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2 months ago
Breathe
The Laryngospasms have made a new Breathe music video. For More music by the Laryngospasms check out their web site at www.TheSpasms.com
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4 months ago
Dawn walking 76 feet in Morquio Longitudinal study
Dawn Walking 76 Feet in timed 6-minute test in 1st Day of Morquio/MPS IV-A Longitudinal Study@Chicago's Children Memorial Hospital (May 5, 2011). A...
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4 months ago
Morquio syndrome - the story of Adnin and Aqilah
Video clip presented at the 1st Malaysian Conference on Rare Disorders & Medical Genetics 2011
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4 months ago
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5 months ago
What is morquio Syndrome?
this video explains the trials that those with morquio syndrome face and what it is.
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commented:
Thank you everyone for your nice comments. Bella will turn 7 on OCt. 5 2011. She is about to go in for her 5th major surgery but she is still my sunshine! She is one amazing little girl. I as her mom think so but so do all her friends and schoolmates! Thank you for learning more about this s...
About ergiburton's channel
Your girls are beautiful! My daughter Bella also has MPS IV and she is 7 now.