eHealth Information Laboratory

Anita Fineberg discusses topics such as consent, the use of de-identified vs. identifiable information, research ethics board approvals, research a...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa presents "Sharing without fear" at the Faculty of Law, University ...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa presents "The secondary use of EMR data" at the Health Canada Priv...

Mark Rothstein from the University of Louisville School of Medicine presents "Reconsidering privacy in the genomic era" at the Electronic Health In...

Bradley Malin from Vanderbilt University presents "Surveying the landscape of privacy in clinical genomics research databases" at the Electronic He...

Mike Spear from Genome Alberta presents "Meome, myome, let's share our genome" at the Electronic Health Information and Privacy conference in Ottaw...

Anita Fineberg (Anita Fineberg & Associates Inc.) presents "Secondary Uses and Disclosures of Personal Information: The Canadian Legal Framework" a...

Murat Kantarcioglu of the University of Texas at Dallas presents "A privacy preserving framework for integrating, storing and querying biological d...

Rose Geransar (University of Calgary) and Farah Mohamed (University of Alberta) present "Online direct-to-consumer marketing for genetic testing: C...

Fred Bieber from the Harvard Medical School presents "Privacy and policy considerations in the use of DNA data banks" at the Electronic Health Info...

Anita Fineberg (Anita Fineberg & Associates Inc.) and Khaled El Emam (CHEO Research Institute and the University of Ottawa) present "PHIPA and Publ...

Debra Grant from the Office of the Information and Privacy Commissioner of Ontario presents "Privacy in the context of the secondary use of persona...

Christopher Cassa from Harvard-MIT Division of Health Sciences and Technology presents "Privacy implications for rare mutation data at the Electron...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa demonstrates how to de-identify correlated variables using the Pri...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa illustrates how to calibrate the de-identified data to meet the ne...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa discusses how to automatically generate custom data sharing agreem...

Dr. Khaled El Emam from the CHEO Research Institute and the University of Ottawa gives a demonstration of our de-identification engine being used o...

Brenda Wilson of the University of Ottawa presents "Psychological impacts of pre-dispositional genetic testing: Possible lessons for direct to cons...

Jules Polonetsky discusses one of the most central issues for the future of privacy, data use and innovation, and addressed the following questions...

Daniel Barth-Jones, Khaled El Emam and Jane Yakowitz explain current de-identification standards in the US and what role they play in the health da...

Effective December 2010, the second edition of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS 2) is the huma...

A working group of the Health System Use Technical Advisory Committee of the Canadian Conference of Deputy Ministers recently released "best practi...

Khaled El Emam shows that the claims on the re-identification of clinical data being rampant and easy are severely exaggerated, and that there is n...

Frank Work and Brian Hamilton trace the evolution of health privacy breaches, reviewing common themes such as why privacy breaches happen, breach d...

Ann Sprague outlines the BORN Ontario data holdings, the process for accessing data, the data de-identification processes in conjunction with the E...

EHR systems offer enormous potential to improve Canada's health system; however, privacy-related information governance issues must be resolved so ...

Deven McGraw discusses some of the promising policy solutions including express prohibitions on re-identification, placing limits on use of the saf...

Jack Corman covers the current initiatives to harmonize or streamline ethics reviews in Canada, including the Health Canada sponsored CGSB Committe...

Risk-based de-identification involves an extensive risk assessment to decide how much de-identification is needed. Khaled El Emam describes the met...

Debra Grant provides an overview of the consent provisions in the Personal Health Information Protection Act (PHIPA). She outlines the circumstance...

Khaled El Emam describes the REB Wizard tool for managing re-identification risk. There are many situations that require an analyst to perform a re...

Khaled El Emam presents the most comprehensive case for using de-identification today as the method of choice for disclosing health information. We...

Grigorios Loukides illustrates the magnitude of the problem using patient records involved in a Genome-Wide Association Studies (GWAS) at the Vande...

Khaled El Emam discusses the challenges to de-identify complex data sets such as those containing longitudinal and geospatial information. The semi...

Rebecca Herold and Khaled El Emam discuss strategies to ensure your organization and business partners are aware of how to appropriately manage and...

Cameron McDermaid provides a brief overview of syndromic surveillance and discusses the implementation of the Advanced Syndromic Surveillance and E...

Anita Fineberg examines the PHIPA regime applicable to health numbers and health cards. She will review the rules related to their collection, use ...

Elizabeth Ashley Durham discusses the steps required to perform privacy-preserving record linkage and discuss open research challenges. Record link...

Craig Earle discusses the current trend of almost all administrative data used for Health Services Research (HSR) in Ontario occurs within a prescr...

Karmela Krleza-Jeric provides a brief overview of the international trends of transparency of clinical trials (WHO international standards, ICMJE a...