debradebbiedeb's Channel

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daddy sang bass debradebbiedeb 16 views fo sho
for ironbiths momma debradebbiedeb 13 views betcha she was a patsy cline fan.
Pajama Drama! debradebbiedeb 20 views a werd about surfin and googlin and commentin for the greater good.
why do today... debradebbiedeb 17 views what u can put off until tomoro?
chronic illness theme song debradebbiedeb 47 views careful theres cussin at the very end
sad song series debradebbiedeb 21 views for my heart
more for jen debradebbiedeb 10 views heh heh
bed head karaoke for jen debradebbiedeb 17 views jendays247 cheer up! or ill keep posting this crap!
its a reynauds sunset debradebbiedeb 19 views new symptoms of white hands and feet that go blue and then swell up and go red hot with serious painage. this day calls for a sunset view. on the upside? a dear friend is c...
our chronic illness support group debradebbiedeb 50 views featuring ironbith!

About Living a Life Worth Living

Created by

debradebbiedeb

Latest Activity

Mar 8, 2012

Date Joined

Oct 2, 2009

About this user

I have Ehlers Danlos and Dysautonomia. I also have Mastocytosis and CVID (Common Variable Immune Deficiency), hypogammaglobulinemia and hyper-IgE, with a low killer cell count and the killer cells I do have are functioning poorly. Because my immune system doesn't fight infection well, I have high viral titers for some very common viruses that are having a party in my body. These viruses are attacking my nervous system and are wreaking havoc on my autonomic nervous system and so create the condition of Dysautonomia (Postural Orthostatic Tachycardia Syndrome). My symptoms include chronic fatigue, tachycardia, fluctuating blood pressure, migraines, food intolerances, anaphylaxis, joint pain, and myalgia, to name a few. My symptoms became severe just after an auto accident when I survived a car crash with amnesia, a concussion and musculoskeletal injuries. My immune system tanked with the physical trauma and I developed chronic thrush while recovering. Symptoms continued to progress over time until I was forced to change my fast paced, goal oriented life to one of living in the moment with a focus on managing my body systems. I describe the management of a dysregulated autonomic system much like driving a manual transmission. A person with an automatic transmission that runs their body efficiently and automatically, does not have to think much about things like heart rate, digestion, blood pressure or body temperature because the body handles those without thought. I help my body manage itself and have to think about it much of the time in relation to temperature, food intake, rest/activity, posture in relation to blood flow...etc. But I'm getting the hang of it. I find treatments that work for a little while and then my body accomodates against it so the search for relief is endless. Some professionals call my conglomerate of medical conditions Myalgic Ehcephalomyelitis or Chronic Fatigue Syndrome. I call it a pain in the ass. :o) Welcome to my channel. I luckily have a strong sense of humor and a stubborn attitude. My goal is to make chronic illness look fun! But don't let me fool you. I was having way MORE fun before I got sick. I am currently experimenting with The Driscoll Theory and am finding a lot of relief from POTS symptoms and using Zantac and Zyrtec. I also started taking Diamox for hydrocephalus and my 2 year long ongong debilitating headache went away! Thanks to The Driscoll Theory, I'm out of bed now more than in it. Thank you Prettyill1, Social Media saves lives! :o)

Age

Hometown

Richardson, Texas

Country

United States

Occupation

I have spent most of my life teaching. I opened a preschool at my church (my dream) and after a car accident and the onset of chronic illness, i lost my job and my church community. I became as invisible to them as my disease.