This podcast features a fathers experience of having a child with TAR Syndrome.

In Thrombocytopenia and Absent Radius there are low platelets and absence of the radius on both sides (bilaterally). The radius and the ulna are the two bones in the forearm. The radius is the bone that is on the side of the forearm where the thumb is. There may be other bones involved as well but the unique feature of Thrombocytopenia and Absent Radius is that although the radius is absent, the thumb is present.

wRVxqE5AjOs

Having a disabled child affects all members of a family. Mothers and fathers can sometimes react in different ways to the news that their child has a disability or medical condition. As a father of a disabled child, you may find your partner or other members of the family looking to you for support at a time when you have to adapt to a new and sometimes difficult set of circumstances.

A dad's role is a mixed one. Many dad's stress the fact that they need to be the breadwinner particularly because of the extra costs of caring for a disabled child, but that this can mean being absent from meetings or from carrying out much of the day-to-day care of their child. Service providers often presume, wrongly, that fathers who are not seen at meetings are not doing anything. As a dad you may feel you have a dual role; you may need to offer support but also provide the practical help that is needed.

Like all parents, when you find out your child has a disability the first thing you look for is information. Many fathers feel this is the most important issue - but have learnt that it is vital not to forget the child in their search for information.

You might find it helpful to get information from others who have been in the same situation. A support group or national organisation which specialises in a particular condition might be a good place to start. Contact a Family can help you with this.

For confidential advice and information on any issue ring our helpline.

Tel: 0808 808 3555
Textphone: 0808 808 3556 e-mail: helpline@cafamily.org.uk

pp3TdLvfAII

Bringing families with disabled children together.

Finding out your child has a disability or medical condition can be difficult and bewildering. Parents of disabled children need support, information and advice.

As a parent of a disabled child you may not know where to turn to or you may be trying to cope with a whole range of feelings, as well as being constantly exhausted from the physical demands of parenting. But there is support out there.

Contact a Family provides advice and support for families with disabled children.

We offer: * a freephone helpline * guides and publications * a family support service * volunteer parent representatives offering local support and information * local offices

For more information on how we can help your family, call our freephone helpline on 0808 808 3555 or email us at helpline@cafamily.org.uk

DB4Ckv_3HcI

Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability.

Contact a Family became a registered charity in 1979 and we have nearly 30 years of experience of working with families with disabled children.

Our vision: Contact a Family's vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society.

Contact a Family's mission and purpose is to remove the barriers imposed by society which prevent families with disabled children achieving their full potential, and to empower these families to live the lives they want to lead.

Our work: Last year, Contact a Family helped over 300,000 families with disabled children.

9LKe8Tygm4U

Bringing families with disabled children together.

Finding out your child has a disability or medical condition can be difficult and bewildering. Parents of disabled children need support, information and advice.

As a parent of a disabled child you may not know where to turn to or you may be trying to cope with a whole range of feelings, as well as being constantly exhausted from the physical demands of parenting. But there is support out there.

Contact a Family provides advice and support for families with disabled children.

We offer: * a freephone helpline * guides and publications * a family support service * volunteer parent representatives offering local support and information * local offices

For more information on how we can help your family, call our freephone helpline on 0808 808 3555 or email us at helpline@cafamily.org.uk

DB4Ckv_3HcI

Having a disabled child affects all members of a family. Mothers and fathers can sometimes react in different ways to the news that their child has a disability or medical condition. As a father of a disabled child, you may find your partner or other members of the family looking to you for support at a time when you have to adapt to a new and sometimes difficult set of circumstances.

A dad's role is a mixed one. Many dad's stress the fact that they need to be the breadwinner particularly because of the extra costs of caring for a disabled child, but that this can mean being absent from meetings or from carrying out much of the day-to-day care of their child. Service providers often presume, wrongly, that fathers who are not seen at meetings are not doing anything. As a dad you may feel you have a dual role; you may need to offer support but also provide the practical help that is needed.

Like all parents, when you find out your child has a disability the first thing you look for is information. Many fathers feel this is the most important issue - but have learnt that it is vital not to forget the child in their search for information.

You might find it helpful to get information from others who have been in the same situation. A support group or national organisation which specialises in a particular condition might be a good place to start. Contact a Family can help you with this.

For confidential advice and information on any issue ring our helpline.

Tel: 0808 808 3555
Textphone: 0808 808 3556 e-mail: helpline@cafamily.org.uk

pp3TdLvfAII

Contact a Family called on parents to tell their story of raising a disabled child holding national competition aiming to highlight the many issues they face on a day-to-day basis.

We had an overwhelming response from parents sharing their stories and we are pleased to announce that we have picked 'Fab Fin' as our grand prize winner!

We'd like to thank all of the entrants for taking the time to take part. The competition has now ended, but we encourage you to upload and share your video stories to our YouTube channel to help support parents in a similar situation to your own.

Enjoy the video!

For more videos from Contact a Family, visit our channel here: http://uk.youtube.com/user/caf amily

Freephone Helpline: 0808 808 3555
Textphone: 0808 808 3556
Email us: helpline@cafamily.org.uk
Website: www.cafamily.org.uk

Subscribe to the podcast on iTunes NOW!

Find us on Facebook, Second Life and Twitter.

mUi87D3TPiI

Contact a Family called on parents to tell their story of raising a disabled child holding national competition aiming to highlight the many issues they face on a day-to-day basis.

We had an overwhelming response from parents sharing their stories and we are pleased to announce that we have picked 'Jaime' as one of our runner up prize winners!

We'd like to thank all of the entrants for taking the time to take part. The competition has now ended, but we encourage you to upload and share your video stories to our YouTube channel to help support parents in a similar situation to your own.

Enjoy the video!

For more videos from Contact a Family, visit our channel here: http://uk.youtube.com/user/caf amily

Freephone Helpline: 0808 808 3555
Textphone: 0808 808 3556
Email us: helpline@cafamily.org.uk
Website: www.cafamily.org.uk

Subscribe to the podcast on iTunes NOW!

Find us on Facebook, Second Life and Twitter.

lsPWJah3W-U

One of the things families with disabled children often most want to hear are parent stories from other families just like them. This video features honest accounts of parental experiences in raising a disabled child.

For more videos from Contact a Family, visit our channel here: http://uk.youtube.com/user/caf amily

Freephone Helpline: 0808 808 3555 Textphone: 0808 808 3556
Email us: helpline@cafamily.org.uk

Website: www.cafamily.org.uk

b1_ZxlXoZxY

One of the things families with disabled children often most want to hear are parent stories from other families just like them. This video features honest accounts of parental experiences in raising a disabled child.

For more videos from Contact a Family, visit our channel here: http://uk.youtube.com/user/caf amily

Freephone Helpline: 0808 808 3555 Textphone: 0808 808 3556
Email us: helpline@cafamily.org.uk

Website: www.cafamily.org.uk

_1cVrzYvGjY

One of the things families with disabled children often most want to hear are parent stories from other families just like them. This video features honest accounts of parental experiences in raising a disabled child.

For more videos from Contact a Family, visit our channel here: http://uk.youtube.com/user/caf amily

Freephone Helpline: 0808 808 3555 Textphone: 0808 808 3556
Email us: helpline@cafamily.org.uk

Website: www.cafamily.org.uk

zRlLffdZ_Ns