amysarahh's channel

I saw that you had mentioned he had been diagnosed with infantile spasms. They look just like what my daughter use to do with the head bopping over and over. They were IS also. Vigabatrin stopped them. She was diagnosed with TSC.

May I ask if he constantly flaps his hands or just sometimes? I have a 2 year old and I know she does weird things with her hands but not constantly.

My daughter use to do this when she was a baby and they would come in clusters. They were infantile spasms and should be caught right away and treated right away. They can cause brain damage.

These look like they may be infantile spasm. My daughter had them when she was one because she was diagnosed with Tuberous Sclerosis. Do these happen in clusters? Does he get very upset? Vigabatrin stopped them.

They let her do it for 13 hours! She seems to be able to sleep during these. My daughter is 2 and had infantile spasms when she was one but medicine stopped them. She has complex partial seizures but are pretty controlled somewhat. It is all scary...

Did your daughter have epilepsy as a baby? Is there a reason that she has it? My daughter has it because she has Tuberous Sclerosis. How is she now?

Have you ever had another seizure? Are you epileptic? I know anyone can have a seizure but if you have more than one you are epileptic. That was definitely a seizure.

My baby started having EEG's at 5 months old and some of them overnight. She has tuberous sclerosis and epilepsy from it. She also did have infantile spasms which are gone. She is 2 and it is hard when they are 2 but she was pretty good but thinking maybe it is because she is use to it unfortu...

She is so cute...how did she pass away? I am sorry.

How long have you had epilepsy?

You have these at night too? Could the Dr. maybe give you Adivan? I have it and it works if I have seizures at night.

Do you have other types of seizures? I have partial seizures but I feel like I am on a rollercoaster that never stops. Nobody would be able to tell but they are seizures.

Do these cause developmental delays?

I see this was a year ago but I wanted to ask what the outcome was. They look like infantile spasms. My daughter had them is why I think it.

Sure...I don't mind looking at the video. I can just give you my opinion but if I were you I would also email it to your neurologist and have them see. That is what we do. I have sent the neurologists plenty of videos on Youtube. If she didn't have a seizure during the EEG it may show as nor...