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BEHCET'S DISEASE - Explained
Do you think you have Behcet's Disease?
SANYA RICHARDS NIKE SPOT ABOUT BEHCET'S DISEASE
 
 
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AmericanBehcets
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Profile
 
Channel Views:
7,367
Total Upload Views:
52,988
Age:
30
Joined:
Oct 20, 2008
Latest Activity:
2 years ago
Subscribers:
85
About Me:
 
The American Behcet's Disease Association is a non-profit organization that offers information, support and hope to those who suffer from Behcet's Disease. Our mission is to raise awareness and educate the medical field so that we can one day find a cure for this rare and debilitating autoimmune disease.
Country:
United States
Recent Activity  
AmericanBehcets uploaded a new video (2 years ago)
A full and very educational piece on Behcet's Disease that explains this rare, debilitating autoimmune disease. Features patient stories, Sanya Ric...   more
 
 
AmericanBehcets uploaded a new video (2 years ago)
The American Behcet's DIsease Association has produced this one minute spot that will air on Television in November & December of 2009. We hope...   more
 
 
AmericanBehcets uploaded a new video (2 years ago)
This spot was created by Nike with Sanya Richards, Olympic Gold Medalist Sprinter and Behcet's Sufferer. Sanya is the official spokesperson for...   more
 
 
AmericanBehcets uploaded a new video (3 years ago)
Sanya Richards at the 2008 Walk for Behcet's Disease
 
Channel Comments
momamedienta (1 year ago)
My small town country doctor thinks I may have BD. I brought the possibility to his attention after watching Mystery Diagnosis with Joanne. He agrees that I have many of the signs. Unfortunately he is completely unfamiliar with BD and so is reluctant to give me the diagnosis.

I do have a question though...when are you going to post the newest TV spot? I was unable to watch it on CNBC (I don't get that channel)
jenejenna (2 years ago)
This is great! I hope people who don't know what the heck is going on with their health will find a diagnosis. I had to diagnose myself by researching on the internet; ABDA hadn't been established then. I've had BD since I was about 20. Except for one remission of ten years, it keeps progressing. However, I'm sure I would be much worse if I weren't taking thalidomide. That was legalized in 1998; when first took it, the symptoms I had were cleared up in ten days!. And I had seriously been considering suicide.
MrMakenIt (2 years ago)
Awesome! I am so glad to see this awareness becoming more visible. I, like most, was lost and confused and scared when I was first diagnosed. Knowing something and being able to put a name on something makes a world of difference. Please continue to work towards a cure and global awareness about Behcet's. Let the world know we exist. Thank You ABDA!
2oldalso (2 years ago)
This video is great! I was first misdiagnosed in 1985, and finally properly diagnosed in 1992. Things have come a LONG way since then. Back then, I was referred to the ABDA from the CDC in Atlanta, Georgia whom I called because I didn't know where else to turn. None of the doctors I went to knew anything about Behcets, and the researcher who diagnosed me told me to read about it in the library but to ignore the part that says I'd die from it because they didn't believe that anymore! I was 26 years old at the time, and very scared. You guys were my security blanket. I spent hours on the phone getting information with the old President of the ABDA - he was a fount of information. Keep up the good work getting information out there!
Kilmyana (2 years ago)
Great job! As Joanne said, it covers all the main and important points in a minute! Really well done and to think this is going to air on tv is amazing! So much hope for all of us and all those who, like us at one time, still struggle with questions and the dx process.
jzeis (2 years ago)
Fantastic video!! It covers all the important points in 60 seconds. Great job!!!
Joanne Z.
donnaj1266 (2 years ago)
So great to find you here on YouTube! I was diagnosed in 97 and this is a great step forward in increasing understanding and awareness.  Awesome job!
McKyleLaw (2 years ago)
I am SO SO SO SO glad that you've made a video, and even more pleased that The ABDA is embracing Social Media (like YouTube, Twitter, Facebook, etc.). Maybe in 5-10 years, when a girl like myself walks into a Drs. office with all the symptoms, that Dr will actually know what is wrong with her. They won't have to cut, and biopsy and test and draw blood and, and, and... It's great to finally be spreading the word a bit.
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