Profile
Name:
AlagilleSyndromeAlliance
Channel Views:
816
Total Upload Views:
453
Joined:
Nov 20, 2008
Latest Activity:
1 year ago
Subscribers:
11
Website:
The AGS Alliance is an international support network for people with AGS (Alagille Syndrome), a rare genetic multi-symptom condition, and their families. We are run by an all volunteer Board of Directors composed of dedicated, committed individuals whose lives have been touched by AGS. We recognize the wealth of knowledge that is gained through research and encourage AGS families to participate in studies so that they may contribute to the growing information base about this disease. We are here to answer questions, provide sound information, and lend a sympathetic ear as families enter the world of AGS and the challenges it presents throughout one's life.
Country:
United States
Recent Activity
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AGSAlliance added new videos to Alagille Syndrome
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AGSAlliance uploaded a new video
A short introduction from our latest AGS DVD. The introduction is by Dr. David Piccoli from Phildelphia's Children's Hospital.
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Subscribers
(11)
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