The Rare Project
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3 months ago
Trevor's Story - CBS Video 1.wmv
Trevor Aldrian CBS San Diego Channel 8 news story/interview by Marcella Lee
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6 months ago
Cystinosis Research Foundation 2011 Video
http://www.natalieswish.org Cystinosis research is improving the quality of life of children and adults with great results from a funded drug tria...
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6 months ago
What is Intracranial Hypertension?
Please Visit the Intracranial Hypertension Research Foundation at:
www.IHRFoundation.org
Music used:
"Eternal Hope" Kevin MacLeod (incompetech.com...
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6 months ago
Dance N Donate Flash Mob @ Westfield Old Orchard to Benefit Youth Services of Glenview/Northbrook
This flash mob was organized to benefit Youth Services of Glenview/Northbrook, a social services agency devoted to the mental health, character dev...
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10 months ago
StopCAIDnow
This video was creative to show some of the HEROES Suffering from Childhood Autoinflammatory Diseases. To learn more about the Foundation and CAI...
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11 months ago
BensFriends.org: Rare Disease Patient Communities
In 2006, Ben Munoz suffered a life-threatening brain hemorrhage. He created an online support community so that he could connect with other patient...
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1 year ago
7000 Bracelets for Hope - N.I.C.E. makes a lot of Bracelets, Ribbons and Pockets!
20 of my friends joined me today and we spent the day Designing in Denim!
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1 year ago
Sound of Music | Central Station Antwerp (Belgium)
More than 200 dancers were performing their version of "Do Re Mi", in the Central Station of Antwerp. with just 2 rehearsals they created this amaz...
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1 year ago
TEDxEast - Rick Guidotti - Redefining beauty
TEDxEast INTERCONNECTIVITY - 11.11.10: -Rick Guidotti- Redefining Beauty
In this engaging pictorial talk, Rick Guidotti takes the audience on his...
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1 year ago
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1 year ago
Webcast : Ataxia Telangiectasia (A-T)
http://www.Alfred.TV READ ME FIRST: Join me with Dr. Howard Lederman from Johns Hopkins Medicine as he provides us with an overview of the genetic ...
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1 year ago
VOTE to help fund hope for sick kids Fluke video
Text to 73774 (PEPSI). Followed by our voting code (102614) in the text message. Please vote daily, every vote counts. Voting ends September 30th.
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TheProjectCRDN
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1 year ago
VOTE to help fund hope for sick kids I Hope video
Text to 73774 (PEPSI). Followed by our voting code (102614) in the text message. Please vote daily, every vote counts. Voting ends September 30th.
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TheProjectCRDN
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1 year ago
VOTE to help fund hope for sick kids Metro video
Text to 73774 (PEPSI). Followed by our voting code (102614) in the text message. Please vote daily, every vote counts. Voting ends September 30th.
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1 year ago
VOTE to help fund hope for sick kids!
The Global Genes Fund is a platform dedicated to promoting rare disease research initiatives that are focused on developing therapies and treatment...
TheProjectCRDN
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1 year ago
VOTE to help fund hope for sick kids!
The Global Genes Fund is a platform dedicated to promoting rare disease research initiatives that are focused on developing therapies and treatment...
TheProjectCRDN
uploaded
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1 year ago
Children's Rare Disease Network Insights
Hear insights from parents of children affected by rare disease, informational, compelling and eye-opening. Join us for Lizzie's story, also pleas...
TheProjectCRDN
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1 year ago
Pepsi Refresh - Global Genes Fund
The Global Genes Fund is a platform dedicated to promoting rare disease research initiatives that are focused on developing therapies and treatment...
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3 years ago
Children. . . with rare disease
A few personal interviews with M.O.M.s, the adorable Moorea and Delaney, and living with rare disease.
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About The Rare Project
CRDN is a program of the RARE Project which which exists to raise rare disease awareness, unify, equip, and empower a vibrant global rare disease community and fund innovations to support "in-their-lifetime" rare disease research. Please join our 1 million for RARE campaign.
CRDN is a program of the RARE Project which which exists to raise rare disease awareness, unify, equip, and empower a vibrant global rare disease community and fund innovations to support "in-their-lifetime" rare disease research. Please join our ...
LOVE This - although it stops for me at 8 minutes. How do we reach Rick - I head up an organization representing millions of children affected by rare disease. And every single day, we see beauty in these children, these parents. Would love to chat more. Rick, please contact me if possible ...