Living with Nemaline Myopathy
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The Will To Survive
SunandMarius
125 views
This is a video I made of my friend, Eric Benjamin Gordon. He is performing a song he wrote in memoriam of those who perished on 9/11. We had travelled to the site original...
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Being Blind
SunandMarius
267 views
A few people on here have questioned if I am really blind so I decided to make a video about my blindness. If this doesn't convince people, I don't know what will!
So I w...
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A Song About the Saints
SunandMarius
19 views
My art teachers singing a song to us. We were studying Medieval Christian art in the RISD Museum, Providence RI. So my teachers thought it would be great to sing this lil s...
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My swallowing problem
SunandMarius
561 views
Here is a video I made for my speech therapist so she can see what eating a meal is like for me. I was able to drink a sip of water really easily which is usually not the c...
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Early Morning Blizzard
SunandMarius
32 views
It's January 27, 2011 and a blizzard has been hitting us since midday yesterday. It seems like this Nor'easter is the millionth one to plow into us. So while taking my dog ...
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Using my CoughAssist Machine
SunandMarius
1,542 views
Here is the video of me using my CoughAssist Machine. It helps me by clearing secretions from my lungs by suctioning out the fluid when I exhale. I use this because I have ...
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Skiing with my best friend
SunandMarius
44 views
I'm skiing down the mountain to meet my best friend halfway down the trail. Love to go skiing with her at NEHSA (New England Handicapped Ski Association). Our instructors a...
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Skiing South Peak
SunandMarius
32 views
Starting down our fav trail on South Peak at Mt. Sunapee, Newbury, NH on Valentine's Day 2010.
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Skiing a Mini Halfpipe
SunandMarius
75 views
My ski instructor and I going through the Calypso beginner's halfpipe at Mt. Sunapee, Newbury NH.
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Ski Lift Unload
SunandMarius
64 views
Here I am getting off the ski lift at Mt. Sunapee in Newbury NH. I participate in adaptive skiing with NEHSA (New England Handicapped Ski Association). They are the greates...
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