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SMA Syndrome
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RedViolin87
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Profile
 
Name:
Samantha Mina
Channel Views:
2,329
Age:
24
Joined:
May 7, 2007
Latest Activity:
2 weeks ago
About Me:
 
My interests range from mural-painting to medical journals, from archery to aviation. You'll find my name on a shelf. (For info on my 7 novels / 3,500+ pages, see my website). I love people, liable to throw surprise birthday parties, hand-make cards, and bake+decorate 20-pound wedding cakes. I'm trilingual (counting html and treble clef). My violin and I wrote our first concerto at age 9. I'd rather be .5-hour early than 5 minutes late. My birth-year = my weight. With Christ's strength alone, I learned I truly do not fear death after brushing it at age 20 with an illness so rare, I authored the Wikipedia article and started the world's first patient support network. My story is featured on the Discovery Health Channel's "Mystery Diagnosis" program. I see the glass "half-full" rather than "half-empty." I don't wait for life's storms to pass; I'm learning to dance in the rain. It'll take far more than malpractice or major surgery to rattle my God-given joy. And beware, His joy is contagious ;)
Country:
United States
Schools:
University of Virginia
Music:
Everything from rock to classical, esp. Christian worship
Books:
The BIBLE, Orson Scott Card, Dr. Jordan Rubin
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Channel Comments
rosewaterfallprod (3 months ago)
Thanks! And yes, Praise God. Also I got a friend who needs prayer; she was diagnosed with chron's disease and I don't know if or when she will have surgery. Its sad to think about it a lot, so we all must pray for her:)
rosewaterfallprod (3 months ago)
Hello Samantha, I feel so much sympathy right now!! Well, I'm thinking that it was really sad when you were suffering! I mean if I put myself in your shoes wouldn't that be painful!

That reminded me, I remember when I was diagnosed with a benign tumor in my ovaries and had one removed. Also, because I could've gotten appendicitis, they also took the appendix out. I remember how before the surgery, it was the most painful time of my life, it wouldn't go away! Even going to the family doctor was hard only cause he kept diagnosing me with constipation... I'm just saying that this was the most painful time of my life.Dx
Well sorry for this really long comment, but hope all is well and gladly you are so much better now! Regards:D
petshopnetwork (10 months ago)
thanks for adding me! I even watched about you on mystery diagnosis.. very interesting story...
VIPER534 (1 year ago)
heya my friend. Jay here ,..just subscribed. Keep up the awesome work of spreading the word.
montanerfan10 (1 year ago)
RedViolin: I've read the wikepedia article! It's really good! :)
MrsJSCarlile (1 year ago)
Please refer people to Dr. Vincent Reger in Portland, Oregon for the necessary surgincal intervention necessary to treat SMA Syndrome. surgery took only 4 hours and he comes HIGHLY recommended by the nursing staff at Providence St. Vincent Hospital off Barnes Road.
hannahlover100 (1 year ago)
aww thanxs that means so much im just hoping i get my diagnosis before its to late
good1paula (1 year ago)
Hi hope all is well :0)
sjbtigger19 (2 years ago)
Samantha! WE ARE PRAYING FOR YOU!!!!!!!!! Our Lord is more Sovereign than ANY doctor or diagnosis! The Lord is GOOD TO US! He is our comfort and our shelter in the storm! :) :) :)
Skinnybonezz (2 years ago)
Just Stopping by to say Hello as well and I love you and your the coolest person in the whole entire Universe! You are my best dearest friend/ Sister-in-Christ. I Love you and many hugs and kisses and love xoxox
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