Retinitis Pigmentosa International
RPInternational1972's Channel
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RPInternational1972
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Profile
 
Name:
Helen
Channel Views:
3,935
Total Upload Views:
51,223
Joined:
Jul 3, 2008
Latest Activity:
1 year ago
Subscribers:
60
RP International seeks to fund and develop the Institute for Degenerative Eye Disease. The Institute will be responsible for the funding and coordination of global research into degenerative blindness, and collection, evaluation and dissemination of information regarding its caused, treatment and availability of services.

Helen Harris is the founder of RPI and also a longtime activist for the blind and vision impaired. Years ago, Helen Harris, then a housewife, painter, and young mother, learned that she was slowly going blind from the degenerative blinding disease, retinitis pigmentosa. She soon learned that two of her three sons had inherited her disease. In 1973, she began RP International to provide support and counsel to those who suffer from retinitis pigmentosa and other degenerative eye diseases, and to find a cure for those diseases.

If you want any information, please give us your contact information so that we can provide you with what is needed.
Country:
United States
Occupation:
President/Founder
Companies:
RP International

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Channel Comments
wondermark3 (2 weeks ago)
hi
olabied (1 year ago)
Hi RPInternational1972  is this also an sollution for every one who has RP, and who begin to become blind? i know an litle girl who is 17 years and has RP and she begins now with blind in the dark/night,

is this also an solution for her? pls tell me how and if this is the sollution, she will be really realy happy, it is soo sad to see her crying because the problem of RP you never know when you will completly blind.

pls let me know how and what, and for wich person theStem Cell Restores Sight will work

gr
giesis98 (2 years ago)
What a wonderful web site, its ones like this that make a cure happen. My partner is 24 and has RP, and has about 4 degrees of vision. It's so hard to watch him suffer, and not be able to do anything. He is a highly intelligent person, while struggling with his RP, he went to college, earned 2 four year degrees, in 4 years. He has gained employment with the Department of the Interior auditing leases, and has completed cane training, and has a seeing eye dog. Sometime the most difficult part is wondering when he is going into the dark.  Peace and Hope for this movement.
yoguely (2 years ago)
Hello.
What does a person with RP should stop straining their eyes looking at the computer , books and tv? What vitams and herbs should he be taking? Is there a cure at Cuba???? What about Canada wellspring clinic for holistic medicine???? Help!!

I just dont want to get blind T_T

please.. what can I do?
skux42 (3 years ago)
hey,

im 17 years old and i suffer from rp but im in reasonably early stages (cant see much at night etc) but it is noticably progressing and i was wondering what forms of rp this stem cell jazz can help cure? how long do you think it will take for this treatment to be available for people that dont get millions of dollars from abc?

also, only vitamin A can help and only with certain types of rp.

anyway, awesome page and keep up the god work.

thanks
RPInternational1972 (3 years ago)
After 35 years of finding cure, we are finally in reach of defeating blindness. We are seeing the first reversals of blindness through the adult stem cell and it won't be long before it will be available, although at least more than a year, as they keep testing it on mulitple patients. However, there is hope that a cure will be available. In the meantime, he sould be wearing UV protected glasses to protect his eyes becuase the optic nerve is still there and should be protected There are also certain vitamins that people are taking that can be found online.
zakilazev (3 years ago)
hey I'm so glad to have come across to your channel anyway my name is Queen and I'm from Philippines. My dad has been suffering from RP around his early teens and from then on it gradually took his sight, and then his job. Now he's 58 yrs old and blind... Yet still he's hoping that someday he could see again...
and I hope this could be the answer to his prayers...
So I wonder how much the treatment cost? I would be very glad to get your response.Thank you so much

sincerely,
Queen
RPInternational1972 (3 years ago)
Thank you for sharing your support. Its good to hear that your mom is doing well. RP International was started by Helen Harris about 35 years ago. When she first found out that she and her two sons had RP, her doctor told her that there was no cure and there was nothing that she could do about it. She decided that night to "Fight" against the disease and the words of her doctor because she could not believe that there was nothing she could do. That is why our mission statement is "Fighting Blindness."
jadeprincess123 (3 years ago)
hey, i just wanted to say that this is pretty cool that you have
a page for blindness. my mom has RP. she has a guide dog, and is doing really well with her ^^

anyways, i just think its really cool you made this page. [=

one more thing, how can you "fight against blindness"?
RPInternational1972 (3 years ago)
Hey everybody!

Just want to get this comment board started. RP International's main goal is to make this channel a place people can go and share their feelings about Retinitis Pigmentosa and to make it the one place stop to view videos of inspiration, entertainment, goodwill, stories, etc. about people who have the condition or are already blind. We are very excited about the launch of the channel and hope you guys are too!

RP International Team.
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