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Parent Project Muscular Dystrophy

ParentProjectMD

Joined: August 15, 2007

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Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.

Since 1994, PPMD has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. Because of our efforts, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists funding Duchenne research and outreach programs.

We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.

Country: United States
Website: http://www.parentprojectmd.org

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Parent Project Muscular Dystrophy Overview Video

From: ParentProjectMD
Views: 10,970
Comments: 10

About Duchenne muscular dystrophy (Duchenne)

Duchenne is the most common fatal genetic disorder diagnosed during early childhood. A progressive muscle disorder that causes loss of muscle function and independence, Duchenne affects approximately one out of every 3,500 boys and 20,000 babies born each year worldwide. The disorder manifests primarily in boys because the affected gene is found on the X-chromosome. Duchenne knows no other boundaries, touching all races and cultures.

Parent Project Muscular Dystrophy (PPMD) estimates that there are approximately 15,000 young men with Duchenne alive today in the United States. Duchenne can occur during any pregnancy regardless of family history. To date, there is no cure or treatment to stop the progression of Duchenne, and young men with Duchenne typically live only into their twenties.

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Olympic Gold Medalist Films Advocacy/Awareness PSA

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