Formed in 2003, the Cystinosis Research Foundations (CRF) mission is focused, to find better treatments and a cure for cystinosis.

Cystinosis is a rare genetic, metabolic disease that slowly destroys every organ in the body, including the liver, kidneys, eyes, muscles, thyroid and brain. There is a medicine that prolongs the childrens lives, but there is no cure.

Today, CRF has raised more than $11 million for research and fellowships in six countries making CRF the largest fund provider of cystinosis research in the world. Every day, researchers around the globe are working to find a cure for cystinosis.

Please help us in our quest to find a cure for cystinosis.

The mission of the Cystinosis Research Foundation is to support bench and clinical research that is focused on developing improved treatments and a cure for cystinosis.