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1 day ago
CCSVI Update - Left Jugular News
It seems that the majority of MS CCSVI patients have the most problems with their left internal jugular vein. That is the case with me too. We'll...
donotconcede • 160 views
MrPauljd
commented:
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1 month ago
Tysabri. Off of it. Big mistake???
Feeling yuck off of tysabri.
Tom1972able • 212 views
MrPauljd
commented:
I did very well for 2 years on Tysabri, then stopped for same reasons as you. Then after 6 months I had a bad relapse ( apparently its the MS resuming its normal activity with nothing to damp it down). I had a 5 day course of steroids, felt better, will probably start another drug after I try the...
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2 months ago
Update on what's going on ....Bring on the drugs
Tysabri # 6 changes in meds dealing with pain and a bit of depression.
Check out ShiftMs http://www.youtube.com/user...
Check...
MSVlogSupport • 272 views
MrPauljd
commented:
Hi Andrea. The last time I spoke to Dr Tom Gilhooly in Glasgow he said they were working on "alignment" or head and neck position, with a physiotherapist. Its their new thing. Even suggested it might be an alternative to venoplasty. Am still going back to Belgium for that tho. Are you satisfied w...
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2 months ago
Living with PML - June 2011
In my latest video, I share some of my experience dealing with PML and I mention how dangerous the medicine Tysabri is and how it's hard for me to ...
angelusa73 • 1,856 views
MrPauljd
commented:
Hello again Angela. I am revisiting your videos because I see my neurologist today, who will want me to go back on Tysabri after my latest relapse of ms. I will DEFINITELY say NO. I hope to try my 3rd veinous angioplasty soon. Got to keep hoping. Best wishes and good health to you.
Paul x
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6 months ago
This Year's Girlfriend
A chirpy little number from Freedom and Public. The words are by Public (Mark) and the tune by me (Freedom aka Sprongo). It was written and recorde...
Sprongo • 17 views
MrPauljd
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7 months ago
Make a Lot of Noise
This song was written and recorded during, and in response to, the Queen's golden jubilee in 2002.
Sprongo • 9 views
MrPauljd
liked
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7 months ago
Vibe Shelter
Written and recorded in 2005. The words are by Public (Mark) and the tune by me, Freedom (aka Sprongo).
Sprongo • 1 views
MrPauljd
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7 months ago
I Don't Belong
This is a song by Freedom & Public. It was written and recorded in 2007. The words are by me, Freedom(Sprongo) and the tune is by Public (Mark).
Sprongo • 2 views
MrPauljd
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8 months ago
PT. Tysabri. PML Do you want this_.mpg
What I am doing in PT, thought about going on Tysabri, a question and is there still a place for this channel?
MSVlogSupport • 529 views
MrPauljd
commented:
Hi Andrea. I just stopped taking Tysabri, after 2 years on it ( a difficult decision, made easier for me because of testing positive for JC virus). I was thinking of trying LDN if need be. Have you tried it? I hope you keep this channel going. Dont know the answer to your question, but do you thi...
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9 months ago
CCSVI-7month post angio update
7 month post angioplasty update.
mamadawnna • 1,201 views
MrPauljd
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9 months ago
Newtown Neurotics - "Mindless Violence" (Live)
UK Harlow punk indie rock music video BlankTV
Like this video? Come see thousands more at the Net's biggest, uncensored, completely d.i.y. punk, h...
BlankTV • 3,496 views
MrPauljd
liked
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9 months ago
Newtown Neurotics Kick Out the Tories
As The Newtown Neurotics, the band began their career playing punk heavily indebted stylistically to The Clash and The Ramones. Over the course of ...
MrBickleMan • 10,686 views
MrPauljd
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9 months ago
MrPauljd
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10 months ago
Losing Letters
A message about our changing focus and what MS-CCSVI-UK is proposing to do about it.
Doviedove • 848 views
MrPauljd
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11 months ago
MS & CCSVI Info Session, Kerri Cassidy
The transcript of this talk will soon be available at www.facebook.com/CCSVIAUSTRALI
A. kezzcass • 1,521 views
MrPauljd
commented:
Superb! Totally spot on speech. This will give us all inspiration to carry this fight forward, even in the face of unbelievable hostility from the "experts" in MS.
Thanks Kerri.
Paul.
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11 months ago
Tysabri Recovery Series - Coffee, infusions and other thoughts
I give my thoughts on ongoing infusions, coffee, CCSVI, PML and other things.
vbeachy • 316 views
MrPauljd
commented:
Hi Vern. Glad you're doing well. When I first decided to go on Tysabri it was your vids that made my mind up. According to my MS nurse the risk of PML goes down a bit if you get past the 2-3 year mark, which must be good news for you. I'm fast approaching 2 years now, so am not entirely confident...
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11 months ago
CCSVI TYSARBI multiple sclerosis 3
invertedstroke's webcam video March 4, 2011 06:37 PM
invertedstroke • 202 views
MrPauljd
commented:
Hello. Thanks for putting your thoughts forward. I'm also on Tysabri- just had no.25. Also had venoplasty (which was incomplete and therefore failed) I'm going elsewhere to spend even more money to have it done properly. I still believe, like you, that ccsvi is the main cause of MS. I'm seriously...
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1 year ago
Living with PML - 2-21-11 - Thank You - Part 1
Angela speaks about her experience with PML and thanks all those who prayed for her recovery. This is part 1 of a 2 part video.
angelusa73 • 4,498 views
MrPauljd
commented:
Angela. Just to add my voice to all the cheers from around the world, thank you and welcome back amongst us on youtube. You DO give us hope!
Love,
Paul
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1 year ago
CCSVI: After the Procedure!
Six days after the procedure on January 10th. So far so good. Noticeable improvements, but waiting to really show on video. Dr. Suchin thinks I ...
donotconcede • 1,486 views
MrPauljd
commented:
Hello again Judy. Sorry about that message getting deleted. Just got paranoid about it not sounding right. I was realy impressed with your video. I had my procedure done here in Edinburgh on sat 8th jan, also hope for gradual improvements. Good luck to us all!
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Good point, Judy. Yes, you had a good result first time round, however briefly. I never did, which makes me think they should have used a balloon bigger than 12mm- the surgeon didnt want to cause more scar tissue. Anyway, the result's the same. Good luck, hope you find a way past this.