About this user
The Myotonic Dystrophy Support Group is a registered charity, founded in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.
We have a central Helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad.
We are fortunate to be supported by professional specialist advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.
Hometown
Nottingham
Country
United Kingdom