LUPUSOLOGY
Lupusology's Channel
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NPSLE; When Lupus Attacks the Brain
Meet Flo
 
Marvin Gaye Yesterday
 
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Lupusology
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Profile
 
Name:
Gary
Channel Views:
788
Total Upload Views:
2,146
Age:
53
Joined:
Feb 11, 2009
Latest Activity:
1 month ago
Subscribers:
28
My beautiful wife has Neuropsychiatric Lupus SLE. I have been my wifes caregiver for 12 years, since Lupus attacked her central nervous system, permanently disabling her. She is 45 and has had Lupus since she was 15. We have been married for 17 years, 2 weeks before our wedding her Lupus flared, and has been active ever since. Every experimental medication, chemo, you name it she has been there. One day she was working as a Group Manager for an insurance company, the next day she was walking in circles in the kitchen with no clue as to where she was going! That was the last day she worked.

I want to show the REAL disease. She will die from Lupus. She is allowing me to video tape the pain and insanity she experiences. A stronger women I have never known. But face it people Lupus KILLS! My wife is unconscious right now, asleep for 34 hours! Every 30 minutes I am doing respiration checks to see if she has passed.

She woke up again.

I am here to kick some ass.
About Me:
 
My name is Gary Hultman, I have known a girl who has Neuropsychiatric Systemic Lupus Erythmatosis for over 31 years. I've been married to her for 18, she has been totally disabled by this disease for 12 years.
Hometown:
Chicago
Country:
United States
Channel Comments
Nonya63 (4 months ago)
I posted this video on another page I have because I have a few friends who also suffer with Lupus bedsides my two sisters and I am mom who died from it 2008 march. Your so right people who can't see a open would or a bandage or bruises think your faking most simply do not care and have no compassion, some jerk just sent a comment to me saying your just drunk. on my lupus video I did not post that....
Hard even to get doctors to take you serious, but when they told me I need to have a pacemaker in my chest soon I said well doesn't that tell you something Lupus loves to get my heart and kidneys most the killer headaches are new. I wish I knew what I could say to help you the only thing is keep doing what your doing when the word gets out it helps the cause.....
And You taught me there is such a thing as NPSLE. I never knew that and glad you are getting that info out....
Much Love and Hugs I send too you and lots of Prayers...
Kind Regards Nonya....
Nonya63 (10 months ago)
So sorry your wife has to suffer with Lupus, and thank you both for the friendship. Lupus is such a mean disease, as anyone who suffers or lives with someone who suffers from it. Much Love and gentle days too you both..
WillowDove40 (1 year ago)
I'm glad you smiled. I wish I could do alot more for you and Flo. Sending you both my Love and Light.
ssshekkie (1 year ago)
There are no words.... my ex- husband has MS for 30 years...you are Flo's angel!
WillowDove40 (2 years ago)
Thanks for stopping by. Happy Thanksgiving to you and your family. Keeping you all in my thoughts and prayers. Love and Light to you.
theleepchatchannel (2 years ago)
Just stopping by to say hello...hope all is well with you and Flo
theleepchatchannel (2 years ago)
I'm so sorry to hear how lupus has affected your wife. Thank you for creating this page to raise awareness and tell people how serious lupus can be. I have lived with it since 2003. I would like to invite you to join my channel.

I pray all goes well with you and wife and that you will maintain the courage it takes to take care of her :)

Chandra
CALICOTV301 (2 years ago)
Im sorry to hear about your wife. Remain strong. Writing this information helps raise awareness. I had a friend with Lupus years ago, but she never explained Lupus to me, and I didn't want to seem intrusive. I recently found out another friend has I so I've researched. Even in my readings, I couldn't quite understand as much as I do in hearing actual voices. Keep faith and keep spreading the word. America would rather show foolish gameshows and things instead of media on Lupus, Hep C, AIDS, etc. to raise awareness.
WillowDove40 (2 years ago)
Thank you for subbing and for the comment. I echo what Beenie posted. Always reach out to us.
lifewithbeenie (2 years ago)
thank you so much for subbing. i'm so sorry to hear about your wife. please don't hesitate to reach out to me for support...to vent...just to talk...we are a very tight and supportive community here on youtube! it's amazing how far we've come. when i first started, no one was doing videos on lupus.
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