Profile
Name:
Gary
Channel Views:
788
Total Upload Views:
2,146
Age:
53
Joined:
Feb 11, 2009
Latest Activity:
1 month ago
Subscribers:
28
Website:
My beautiful wife has Neuropsychiatric Lupus SLE. I have been my wifes caregiver for 12 years, since Lupus attacked her central nervous system, permanently disabling her. She is 45 and has had Lupus since she was 15. We have been married for 17 years, 2 weeks before our wedding her Lupus flared, and has been active ever since. Every experimental medication, chemo, you name it she has been there. One day she was working as a Group Manager for an insurance company, the next day she was walking in circles in the kitchen with no clue as to where she was going! That was the last day she worked.
I want to show the REAL disease. She will die from Lupus. She is allowing me to video tape the pain and insanity she experiences. A stronger women I have never known. But face it people Lupus KILLS! My wife is unconscious right now, asleep for 34 hours! Every 30 minutes I am doing respiration checks to see if she has passed.
She woke up again.
I am here to kick some ass.
I want to show the REAL disease. She will die from Lupus. She is allowing me to video tape the pain and insanity she experiences. A stronger women I have never known. But face it people Lupus KILLS! My wife is unconscious right now, asleep for 34 hours! Every 30 minutes I am doing respiration checks to see if she has passed.
She woke up again.
I am here to kick some ass.
About Me:
Hometown:
Chicago
Country:
United States
Subscriptions
(23)
Subscribers
(28)
Channel Comments





Hard even to get doctors to take you serious, but when they told me I need to have a pacemaker in my chest soon I said well doesn't that tell you something Lupus loves to get my heart and kidneys most the killer headaches are new. I wish I knew what I could say to help you the only thing is keep doing what your doing when the word gets out it helps the cause.....
And You taught me there is such a thing as NPSLE. I never knew that and glad you are getting that info out....
Much Love and Hugs I send too you and lots of Prayers...
Kind Regards Nonya....
I pray all goes well with you and wife and that you will maintain the courage it takes to take care of her :)
Chandra