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"He is on 3 seizure meds right now...Diazepam, Primidone & Felbatol. ..."
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"He is on 3 seizure meds right now...Diazepam, Primidone & Felbatol. He had a Neurology appointment today and they started him on Tranzene plus he has an appt with a Neurosurgeon to talk about getting a Vagal Nerve Stimulator. I hope it works. Thanks for the advice...he's already tried both Topamax and Clonazepam. Just didn't work as well as we wanted it to. Thanks for suggesting what to do during his seizures..I will try that...Judy"
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Judyw2009 uploaded a new video
(10 months ago)
This is the Second part of the seizure Gunner was having. As I said This...
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This is the Second part of the seizure Gunner was having. As I said This is my 22 month old old son, Gunner, having a s He has CDKL5, a rare genetic disorder which causes him to have seizures and he is also develpmentally delayed. They started out as Infantile Spasms when he was just a few months old but have now gotten worse. He is on three different seizure meds right now but we will probably be changing that too because the seizures have gotten worse. THere is no cure for CDKL5 at this time but we continue to pray that one day there will be. He is a very precious little boy.
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Judyw2009 uploaded a new video
(10 months ago)
This is my 22 month old old son, Gunner, having a seizure. He has CDKL5,...
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This is my 22 month old old son, Gunner, having a seizure. He has CDKL5, a rare genetic disorder which causes him to have seizures and he is also develpmentally delayed. They started out as Infantile Spasms when he was just a few months old but have now gotten worse. He is on three different seizure meds right now but we will probably be changing that too because the seizures have gotten worse. THere is no cure for CDKL5 at this time but we continue to pray that one day there will be. He is a very precious little boy.
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