Limb-Girdle Muscular Dystrophy 2A
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Stair Descend Part II.MPG
Stair Descend Part I.MPG
Stair Ascend Part III.MPG
Stair Ascend Part II.MPG
Stair Ascend Part I.MPG
Sneaker Study Findings.MPG
Rising from a chair.MPG
2011 Walking.MPG
Stair descend part II.MPG
Stair descend part I.MPG
Stair climbing part III.MPG
Stair climbing part II.MPG
Stair climbing part I.MPG
Sitting down using a belt.MPG
Rising from the ground.MPG
Rising from bed.MPG
Rising from a chair.MPG
Kitchen Step.MPG
Hallway Step.MPG
2010 Walking.MPG
New Balance Sneaker Study (Ankle Weakness)
June 2009 Stair Climbing
Rising from a chair year 2.
June 2009 Walking Video
Ground Stretches
Transitional Stretching
Head/Shoulder Stretches
Wrist Exercises - LGMD2A individual
Doorway Stretches from a LGMD2A individual
LGMD2A: Belt Assistance Rising from a Chair
Limb-Girdle Muscular Dystrophy 2A: Walking
Limb-Girdle Muscular Dystrophy 2A: Stair Descend
LGMD2A: Getting up from a Laying Down Position
LGMD2A: Rising from a Chair with a Wristband 3/08
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John71377
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Profile
 
Name:
John
Channel Views:
24,149
Total Upload Views:
302,604
Age:
34
Joined:
Feb 27, 2008
Latest Activity:
2 weeks ago
Subscribers:
277
I started making videos for one reason, to help other people going through what I am going through learn from what I have to offer in regards to physical movements slowly changing over the course of being diagnosed with LGMD2A. I started a non-profit organization to raise both awarness and money to fund research for a cure. You can visit the site by going to www.beyondlabelslimitations.com to learn more about what I am doing and how you can help. Thank You for finding me.
Country:
United States
Schools:
B.S. at Kutztown University of Pennsylvania
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Select sections from an inspirational keynote address by Nelson Lauver.
 
 
John71377 commented on Limb-Girdle Muscular Dystrophy 2A: Walking (1 month ago)
"I was 31 years old. Don't be afraid RandomNameOne...every person with LGMD has different courses that their LGMD takes on. Your sister may have a..."   more
 
 
John71377 commented on Stair Ascend Part II.MPG (1 month ago)
"Every time before I climb the stairs I close my eyes and visualize myself walking up each step as a "normal" person would walk up them. ..."   more
 
 
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Motopony's music caught the ear of Music Director Jason Bentley immediately and we get to hear the newcomers from Seattle live on Morning Becomes E...   more
 
Channel Comments
nenitaisabella (1 month ago)
Hello I would like to know more know more about your illness
ever need crutches or a cane to walk or need to use a wheelchair?
I hope you answer me and I will study physical tarapia very interested to know
excuse my bad English
jubinjibin (5 months ago)
sir plz respond i too have muscular dystrophy but doctors couldnt identify exactly which md i had and i am 17 well i dont have duchenne thank god for that i still have got the strength to walk but if i fall its not possible to get up from the floor plzzz you could give me tips how to most of my things Independently but i believe god will help to cope with the disease like ur doing and ur videos are really helpful to me especially fo those with mds and many people has made of me since i was11 cause of my wierd walk
Mitosynergy (5 months ago)
Please take a look at .com MitoSynergy
irpezcuezo (9 months ago)
hy john! i´m from spain...i want to tell you something: you are a king doig all of that! I´m doing homework about muscular distrofy of children... and i am very surprised watching your videos.... i only can tell you lets go superman!! (sorry for my english) un beso desde españa ( kisses from spain) IRENE.
MsCrystalwings (10 months ago)
Hi John. Just stopped by to say hi, and hope you keeping ok. Will chat soon. Lots of Love D :)
serajstyle (11 months ago)
How are you now John?
MissTabascoo (1 year ago)
Hi John,
I am student of physical therapy from Czech republic (Europe). Thank you very much for your videos! Its help me understand much more about life with muscular dystrophy. I wish you luck!
jaquot7 (1 year ago)
Dear John,
Please don't be ashamed of anything, especially concerning your LGMD2A or waht ever, it's not your faukt and may I remind anybody, it could happens to anyone of us. Let me tell you John, you are an inspiration to each and evryone of us! Thank you for posting your videos on how well your succed to fight the desease on a daily basis and to show us your progress on the fight of your life! We should all learn the courrage and the determination of fithing our weakness to acheive the goals of our life! And for you John it's to move ahead! I personally thank you John to show me on a daily basis how to acheive a step forward! Happy New Year John and May all your wishes come true in 2011 and if it's a step forward for you John, may the World Be The Witnesss of Yourself Determination on Lving your Loife to the Fullest my friend! May the Power Be With You John Always!
May God Bless You Always John and all your daily acheivements!
Best regards & HUGZ, JJ
houder2010 (1 year ago)
i'm alex from China..i watched your video named stair climbing ...i got so much respect for u! No, ur wrong! U don't need to be afraid of letting people see u climb stairs! Instead, u should let as many of them see it as possible!! Those who with a different eyesight of u are idiots! If he has a heart,he should applause for u! Good job,John ! and keep doing what u are actually doing now! We feel proud of u!
Best wishes from China,
ALEX
candypatches1 (2 years ago)
Hi John,
I just wanted to say thank you for making these videos. My husband has LGMD and is in a wheelchair now. I didn't know him before he was in a wheelchair and viewing these videos with him really brought back alot for him *and not in a bad way* and it showed me how he moved about and things he had to face. He really appreciates that there is someone out there that is trying to help others with M.D. and also to help other people that don't have M.D. to understand it a bit better.
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