Families of Spinal Muscular Atrophy is dedicated to Advancing Research and Supporting Families.

In 2009, the entire SMA community will celebrate the 25th Anniversary of Families of SMA.

Back in 1984, very little was known about Spinal Muscular Atrophy. It was frequently misdiagnosed. Very little research was being conducted. No one knew the cause of the disease let alone how to find a treatment and a cure. There were no family support services and no clinical trials. Patients and families affected by SMA were on their own and had little hope.

Today, FSMA has a different story to tell: Families now have hope. Our goal for 2009 is to have raised $50 million for SMA research. Families of SMA funds and directs the leading SMA research programs. Our support comes from generous individual donations and numerous fundraising events held by volunteer families and our chapters.