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Channel Comments
Im also a Friedreich's Ataxia patient.
now Im 19 years old & studying B.Tech 3rd year
I Suggest all patients to eat natural food so that they can b more comfortable
and please inform me if any cure found
at present im using "homeopathy" medicines
hoping ill b cured.
I'll do exercise daily I like to build up my body... like brouce ley
Solo deseo poder correr algun dia
por favor no dejemos de luchar.
Bendiciones
4 Months ago i posted some comments here, my previous account was Followingmypath.
Let us pray please, all of us, for a cure that will be found, soon.
May God help those who suffer from an illness, and may God help those who love them.
It is very difficult to talk or write about the enormous emotional pain someone is going through, day after day after day. Seeing the lost of another capability. Accepting this, and accepting there is nothing you can do, nothing to stop it. It is the most terible pain to a mother, to see her child strugling and fighting against this cruel enemy wich is inside his body and wich is taking life away from him little by little.
PLEASE PLEASE, NEVER STOP trying to find a cure!!!
I ask you with whole my heart , for my son, for everybodys son or daughter diagnosed with Friedreicher's Ataxia.
Thank you sooooooo much for trying!!!!!!!!!
Huda.
Please never stop trying to find a cure!!
My 23 year old son was diagnosed with Friedreicher's Ataxia 4 years ago.
In my sons case the Ataxia is very agressive, since 2 years he is in a wheelchair, after trying to "walk" 2 more years after he was diagnosed. He fell whole day, could not get up anymore, every day.
Finally after these 2 years i had to put my son in the wheelchair myself. I told him he fought as hard as he could but enough was enough. He wanted his body to do something it just could not do anymore.