About this user
Hello!
My name is CJay. I am an adult living a great life for 37 years with Cystic Hygroma. Last year I started a support group on Myspace and on Facebook for this condition. I blog about living with it. My group on Myspace has 158 members with a group of teens, adults and children living with this condition. We also, have angel families who have lost someone to this condition. I blog about living with CH on this group and offer many resources. On Facebook my group has 325 members. I also, share resources and we have a communication board. You can find me on both by searching Cystic Hygroma. I should come right up. Once on Facebook look for a red awareness ribbon and a link to JOIN that group. That will take you to our support group where we are 325 strong.
Here is a link to my myspace friendship page and group:
https://www.myspace.com/lmnetwork
https://www.groups.myspace.com/lmnetwork
Hope to see you there!
CJay
Age
40
Country
United States
