Cystic Fibrosis Foundation
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NACFC09 - An Interview with Ann McMullen, RN, MS, CPNP
NACFC09 - An Interview with Dr. Lisa Saiman
NACFC09 - An Interview with Dr. Bonnie Ramsey
 
Cystic Fibrosis NYC
 
CysticFibrosisUSA
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Name:
Cystic Fibrosis Foundation
Channel Views:
25,924
Age:
54
Joined:
July 13, 2007
Last Sign In:
3 days ago
Subscribers:
538
Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive systems of approximately 30,000 children and adults in the U.S.

More than 10 million Americans are unknowing, symptomless carriers of the defective CF gene.

The Cystic Fibrosis Foundation is the leading organization committed to finding new therapies and ultimately a cure for CF.

Help fight CF! Visit www.cff.org to learn more.
Country:
United States
Channel Comments (59)
TRUTHorOPINION (2 days ago)
Yes, Cystic Fibrosis is a terrible disease, ( along with other terrible diseases and such).; and unfortunately the Cystic Fibrosis Foundation has taken advantage of that to fill the coffers of its own greedy pockets. They play on the emotions of victims, ( those who have the disease, family and friends as well). Robert Beall is no more than a token spokesman and a fraud. The organization uses threats and other high pressure tactics and deceptions to achieve their main deisign; Which is to continue the life long scam of filling their own pockets.

C.F, patients are not only victims of the disease; but victims of the foundations treachery and deception. (On a lighter note, exposing them would make a great moive) :0)

If you have any further questions feel free to let me know.

P.S. Scamdipharm is just as fraudulant
ILoveMuseAMJF (3 weeks ago)
hey, i'm from england and we have 8000 sufferers. my sister has cf and i think that, although cf affects the sufferer terribly, people (especially my peers) dont always realise how much it affects the whole family. what is the statistic of carriers in america? for us its 1 in 25. xx
iamgreengirl123 (2 months ago)
I Am 11 Years Old and i have CF And The Docters Asked Me if i can Do tests I Think I will!I am also Going to Raise Money For The CF Foundation By Lemonade Stands And At School!!
pacsuninsider (4 months ago)
Looking forward to a successful fundraising event with the CFF at the PacSun Pipeline to a Cure this Saturday. See you all there, much love! PacSun Community
starscantwinkle825 (4 months ago)
Hi, I have CF and I'm healthy and happy. Please come to my channel and click on the website link for Team Faith's website to learn more about this genetic disease and all of the fundraisers Team Faith is hosting.

PS.-I'm totally subrscribing! Thank you for helping to educate others on the CF!!!!
HeatherSC02 (4 months ago)
I'm 17 with CF. You have good and bad days but you just have to not let it get you down and make the best of things. I have been in a few clinical trials and still volunteer for some. We will make CF stand for Cure Found...it's going to happen.
worryedparent (5 months ago)
my daughter has cf annd is have hard time with it. she nee people to talk to.
YasminMcgraw (5 months ago)
Oh my god :[
My bff's sister is suffering this and her sis is only 6! :'[
FQLUTA (6 months ago)
thank you so much,for accepting my friend request,my channel belongs to the portuguese association of cystic fibrosis...Sadly very small yet,we are working very hard to make it bigger...
Congratulacions cff...
1steve726 (6 months ago)
Someone very near and dear to me lost a child 2 years ago and has another diagnosed with this horrible disease now.She is a very special person!Just asking for everyones thoughts and prayers as she goes through this.I will be making regular donations and send my heartfelt thoughts and prayers for anyone suffering from CF!!
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