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Playlists
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Cystic Fibrosis Foundation Videos 9 Videos
This playlist features video created by and for the Cystic Fibrosis Foundation.
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CF News and Information 10 Videos
This is a collection of cystic fibrosis related news and information
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Channel Comments (29)
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My cousin has cystic fibrosis and she is only 10. They found out about it when she was only 3 years old. She is happy and has a ton of friends. She is doing great besides the CF factor, and everyone in Pittsburgh does it for her.
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hello, my name is jose iam 26 and I have CF and about year and half ago. I need a lung transplant so me and my mom came to Indianapolis Indiana to talk to the doc about having a lung transplant and he ask me about having my pancreas transplanted too. but I had to think about it and talk it over with my parents so I did and I also talk it over with my cf doc and both my parents and doc said it was up to me so I went ahead with it. so in august 2006 I was the first one in the nation to have a double lung/pancreas transplant done with someone living with cf. and I don't regretted anything and this coming august 2008 it will be 2 years and doing good thanks to god
ps keep your head up and keep on fightin there will be a cure soon |
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I'm giving a speech at my church about CF. If you could only said one thing about CF what would you tell them. By the way i just want to say keep your head up. I know it hard sometimes living with CF but God will need live you in a storm without him helping you through the storm. I have been living with CF for almost 31 years and I wake up everyday and thank him for life, and everyday he show me the way to get through the day. I know now my way to get through the day is to let someone else know about the foundation an how the can help us find a cure.
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one of my friends has cf. keep up the great work!!!!
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My son was diagnosed with Cystic Fibrosis at the age of 9 months, he is now 23 months and doing well. I am greatful that he was diagnosed early so that we were able to take steps to treat this disease. Thanks to the CF Foundation and all the great work they have been doing to fight this disease, they have come a really long way. The video is really informative and it is good to know that the word is being spread about CF. Let keep taking "STRIDES" and make CF stand for "CURE FOUND". May God Bless you all and continue to take care of yourself and each other.
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I thought the video was excellent. The CF Foundation has come a long way since I was born. I am very excited about the new advancements being made especially what we just heard about regarding VX-770. Since the discovery of the gene in 1989, you have a hope that a cure is just around the corner, but as the years pass, you get a little impatient. The results of the VX-770 of the Phase 2 Clinical Trial is very promising. Keep up the good work! I know that we will beat this disease eventually. I'll never give up fighting and I know that the CF Foundation won't either. Thanks for what you do for adding tomorrows everyday for those of us with CF. God Bless!
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What a great video-brought tears to my eyes. I've met Bob Beall, and he's a really terrific guy. My daughter has CF, she's 11 years old, and healthy. My most sincere thanks to the people at the CF Foundation, all the doctors who take care of her, and most of all to my wonderful daughter, who is so brave, and so strong, and so willing to participate in her own care. There is hope.
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Great video!!
I'm CF too. I'm brazilian and have 26 years old and want make new friends and exchange experience. |
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Thank you for all you have done. My son Branen, who is now 9, is living a happier and healthier life because of the foundation. We strive everyday to make "CF" stand for "CURE FOUND"!
4th Annual "A Catch For A Cure" Softball Tournament for Cystic Fibrosis Saturday, June 14, 2008 & Sunday, June 15, 2008 9:00 am -- 6:00 pm Highbridge Ball Park Highway 13 North, Highbridge, WI All Proceeds To Benefit The Cystic Fibrosis Foundation In Branen Gordon's Name This is just a friendly reminder to all our friends and family of our upcoming charity event to benefit Branen and the Cystic Fibrosis Foundation. If you have any questions or would like to donate, please feel free to call us at 715-274-5010, or mail a tax-deductible donation made out to the Cystic Fibrosis Foundation, to The Gordon Family, 720 Lake Drive, Mellen, WI 54546. Help Us Make "CF" Stand For "CURE FOUND"!! THANK YOU, The Gordon Family Dennis, Erin, Bray & Branen "Adding Tomorrow's Everyday!" |
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I am a parent of identical twins with CF. Life is definately difficult with two boys having the same medication schedule, same illnesses, same needs. I am so praying for a CURE!. and glad that the public is gaining much needed awareness.
Keep up the good work!. Kathy, mom to twins with CF My personal quote: If there is a CURE for CF this very moment and this very moment is NOT soon enough, you'd hear this twins mom "ACROSS AMERICA" "YESSSSSSSSSSSSSSSSSSSSS!!!" |
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