About this user
Who We Are
Children's Brain Tumor Research Foundation is an IRS 501(c)3 nonprofit public charity consisting of parents, doctors, researchers, and concerned friends, united in our common frustration with the lack of information about, research and awareness surrounding, and treatments available for the less common types of childhood brain and spinal cancers. We strive to promote and further the research, education, and awareness surrounding rare types of childhood brain tumors.
What We Do
◦Identify and fund novel treatments for childhood brain tumors.
◦Provide message forums for families of children with cancer to talk with others fighting the same battle and to learn more about these rare types of tumors. Our forums promote open dialogue between parents, doctors, and researchers worldwide in an effort to find a cure.
◦Develop and distribute educational material to children's hospitals around the country that can be provided to parents of newly diagnosed children.
◦Compile and store information voluntarily supplied to us by parents with children battling rare cancers pertaining to their child's diagnosis, treatment protocols, results, and other relevant data. Our goal is to isolate trends and patterns in the data in hopes of helping other parents and doctors make the best choices for their children and patients.
Age
36
Country
United States
