1turnbulls's channel

My Stellar Stella

These are the Faces of SMA

These are the Faces of SMA

Bill and Victoria Strong, with daughter Gwendolyn, show how the new health law is providing major relief for American families. After watching, get...

The belVita Breakfast ad campaign launches with commercials encouraging people to fuel their mornings with new belVita Breakfast Biscuits. Each spo...

This video was uploaded from an Android phone.

New bike!

Stella

This video was uploaded from an Android phone.

This video was uploaded from an Android phone.

Stella has Spinal Muscular Atrophy Type I which has robbed her of a lot of things including her swallow, ability to sit up by herself, and even her...

www.vivint.com/givesbackprojec­t/charity/879

Oh it's the little things in life that can make us so happy . . Stella loves to balance her baton! :)

Stella trialed the MyTobii P10 communication device for one month. This device will help her be able to communicate her needs/wants and will also ...

http://www.sophiascure.com

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To Learn more about SMA visit www.sophiascure.com

"ROBBIE ROSEN ORIGIN...

My take on the Oligo research for SMA, based on the published research articles.

"Antisense Oligonucleotides Delivered to the Mouse CNS Ameliorate...

Stella has Type I Spinal Muscular Atrophy. Before age 2, she could hardly tolerate anything other than a flat position. Over the past 1 1/2 years...

36 Months = 3 Years! A 3rd birthday is a day we thought Gwendolyn would never get to see. Gwendolyn has SMA Type 1 (Spinal Muscular Atrophy), the #...

We can't tell you how excited we were to see Stella driving a powerchair yesterday! She learned VERY quickly and enjoyed it so much. She was even...

We can't tell you how excited we were to see Stella driving a powerchair yesterday! She learned VERY quickly and enjoyed it so much. She was even...

Cassie and Skylar Swanson were born on March 7, 1997 and at the age of 5 months were diagnosed with the severest form of Spinal Muscular Atrophy (S...

For those of you who know Stella, you know she doesn't really "speak" but she will "hoo" and make other audible noises. In the video we recorded f...

Chloe (sma type one) playing with her caterpillar....he he

Raising Awareness about Spinal Muscular Atrophy (SMA) SMA is, oftentimes, referred to by medical professionals as a 'death sentence'. I made this i...

SMA - Spinal Muscular Atrophy - kills more babies than any other genetic disease. SMA is currently a death sentence. But, there is enormous HOPE! R...

This is part 2 of a slide show that I put together for my son Josiah. He passed away on December 3rd, 2009 after a 10 1/2 month battle with Spina...

Stella has Spinal Muscular Atrophy Type I so the smallest of movements are the biggest of joys! We love you Stella

Stella is almost 2.5 years and Type I Spinal Muscular Atrophy. She plays games/toys using a switch device. We didn't realize she loves basketball!

It sure was a thrill watching Sophia board the bus for her 1st day of kindegarten!

Using the IPV (Intrapulmonary percussive ventilator),Cough Assist, & Suction

Center for Courageous Kids Camp in Scottsville, KY. SMA Family Retreat - April 2009

I used this video in my Right to Live Presentation. It was prefaced by my saying You DecideWho Lives? Who Dies?

Let's just say that there weren't v...

This is an attempt at documenting Jacob gaining the ability to use his arms. We put together the trapeze with PVC pipe to fit Jacob's frame and th...

Stella has Type I Spinal Muscular Atrophy. At one month of age she lost most of her muscle tone, so we take great delight in these little accompli...