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1ehlersdanlos favorited a video
(2 months ago)
The Nova Knee Cruiser is an excellent mobility device for foot or ankle ...
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The Nova Knee Cruiser is an excellent mobility device for foot or ankle injuries that require the patient to not put weight on the affective area. It can be a great long or short term alternative to crutches or folding walkers that can have adverse affects such as back or underarm pain from extended use. The knee cruiser allows the user to maintain an active and more independent lifestyle which will help them progress to a quicker recovery.
This knee walker has a contoured pad which helps keep the affected leg in in place. Bicycle hand brake can be changed to either side to accommodate either leg injury. Brake operates with one hand.
http://justwalker...
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Meet Gregg Bossen, creator of QuickBooks Made Easy QuickBooks training o...
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Meet Gregg Bossen, creator of QuickBooks Made Easy QuickBooks training on CD, and get acquainted with the finest, most comprehensive QuickBooks training available.
For more information please visit:
http://quickbooks...
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1ehlersdanlos favorited a video
(7 months ago)
A Public Service Announcement created by the National Marfan Foundation ...
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A Public Service Announcement created by the National Marfan Foundation (NMF) featuring Anthony Rapp, star of the original stage and movie versions of the hit musical "RENT." Info on the NMF can be found at www.marfan.org.
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1ehlersdanlos favorited a video
(7 months ago)
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1ehlersdanlos favorited a video
(7 months ago)
http://www.myspac...
BBNB PROUDLY SUPPORTS PATRICIA & HER SONG DUSTIN...
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http://www.myspac...
BBNB PROUDLY SUPPORTS PATRICIA & HER SONG DUSTIN IN RAISING AWARENESS FOR THESE RARE CONDITIONS.
Patricia, who has been nearly bed-ridden for three years and cut off from the rest of the world by a series of major heath issues, is using MySpace to raise awareness about two rare diseases.
Patricia has two rare and often misdiagnosed diseases that don't allow her to work or drive.
But she has managed to find a way to reach people in the outside world; the homebound woman is using the Internet to reach out and raise awareness about her diseases.
Patricia has Ehlers Danlos Syndrome, a disease that breaks down collagen; she also suffers from Mast Cell Disease, which makes her have potentially fatal allergic reactions. As a result, Murray can't be around Latex, perfumes or even light.
Her doctor agrees such cases are extremely frustrating. Dr. Opal Alpan said, "Current medicine doesn't have either answers or medications" for her situation. In fact, he says, there is no cure for her.
But Patricia isn't giving up; she is fighting back with music. Murray invited artists to become friends on her MySpace page, where she posted information about her diseases. Murray says she has singers from Australia, Asia and Pakistan, and that they know about Mast Cell Disease and Ehlers Danlos because of her.
Patricia is so adamant about raising awareness for the diseases that she held a contest online and awarded the winner $20,000 of her own money.
Despite a life of chronic pain and endless medication, Patricia says she is happy about getting the word out with the help of singers in cyberspace.
Patricia's son Dustin also has Ehlers Danlos Syndrome, which is genetic. He is hoping to to stage a concert in the D.C.-area this fall with some of her contest winners.
Adapted from the TV interview.
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my husband peter have ehlers-danlos
i have a page on netlog for him and everthing a find on you tube for eds i putting it there to
now i have a problem i can not your latest video sending to netlog i can not duplicate this for me on netlog can you ondue this so i can putting it on netlog and trying to raise awareness for eds
but thx for this nice video
so together can we fight for this hard disease
regards from belguim
I love your channel and the awareness your trying to raise for EDS. If you would like to pop over to our channel you might be interested in Kip's song that he wrote about VEDS. It has received some really caring and compassionate comments and is hopefully also raising an awareness for all those suffering. It's called: "Sweet Memories."