hi sue its chloe :)

Hi LiverOmar!

I'd suggest you look at : HOPES at http://www.stanford.edu/group/hopes/ and The HD Lighthouse at http://www.hdlighthouse.org/

One video you might wish to watch despite it being long is Decision Making in the Genomic Era at http://www.youtube.com/watch?v=vlFXblyePRA

I hope those suggestions will help.

hey sue, I really appreciate the work you're doing for the cause.
can you please give me a site or a video speaking about the disease from a genetic point of view cause I'm making a poster for students want to be doctors
Thanks in advance.

Hi Gina & Andrea! Sorry for the delay getting back to you but I've not been online much recently. I'm well, thanks. I moved house in December so am busy getting the new place sorted out. Matt is well too and will be running the London Marathon next month - his first! I hope you are well and can get your accounts sorted out. Someone hijacked my Yahoo Messenger recently and has been sending out IMs under my name.... grrrrr. Take care and God bless

hey sue. remember us? gina and andrea! well gina kinda forgot her password so shes tryinng to get that back. this is gina on andrea's youtube account. how are you? i haven't talk with you in a long time. how is matt and how is everything?

My Mom has for This diease she is gettin worser now she wont even come down stairs i am 15 i really wants some help my dad is always buzy with her i just want to talk to my mom but she dont understand i want to know if i have got it i think i might but there is no way i will every know please could you help me. God bless!

hey sue! i made a video on Huntington's Disease and I plan to make more videos.

If you don't mind watching it, that would be great :)
well, talk to you later

<3 Gina

Thanks Sue for adding me as a friend! God Bless You

Hey Sue! I'm Gina's sister. I just wanted to tell you that now im kinda interested in studing HD because Gina was just studing about it.And I just wanted to know if you could be my friend. By the way my name is Andrea. God Bless You.

Hi Gina! Only just saw your comment so probably too late to answer - sorry!

Huntington's Disease places a huge burden on any population since, although a rare disease, it impacts the whole family not just the sufferer. Many sufferers have depression and just as many, if not more, caregivers suffer depression too. As the disease progresses, sufferers need greater and greater support until they require 24/7 care for all their needs. Caregivers who attempt to provide this are prone to burn themselves out and, of course, can no longer work either. The impact on each family is huge - physically, emotionally, and financially.

Huntington's can indeed be targeted for gene therapy and researchers are currently working on being able to silence the mutated gene. I believe this will be the eventual cure.

I hope those answers help a little and aren't too late!

Love and hugs,
Sue