Thank you for sharing your story. My father died of scleroderma in 1993 after suffering for several years before he was diagnosed. By then his symptoms were progressive and systemic. It is a shame that because of the rarity of the disease, most doctors are unfamiliar with the symptoms. Your efforts at educating the populace are much appreciated.

Great video! Im not sure if you have myspace or not but there is alot of great groups on there for people with scleroderma.  I have met so many wonderful people on myspace. I wish you many pain free days and thanks for such an amazing video.

I would like to hear from other sufferers from this disease. I live in Australia.

I am a scleroderma sufferer. I just finished typing, and cannot get my comment posted. I am trying to communicate with other sufferers. I am "last stage". Confined to bed for 2 years, and a wheelchair. I hope I can get this posted, otherwise, I will give up.

Thank you for this channel.