sabraelluver
Profile
Name:
Jacey
Channel Views:
4,541
Age:
16
Joined:
October 05, 2007
Videos Watched:
7,247
Subscribers:
74
Website:
About Me:
Please noone take the footage off of my youtube videos UNLESS I give you the permission
My little sister Karli, my dad, my older sister Erica, and myself all have Huntington's Disease Karli, Erica, and me have jhd and my dad has adult hd
... please go to HDSA.org and help! The message I want to spread is that children DO get this disease and it IS terminal. It's not only an adult disease! Anyone that's just a few months old and older CAN get this disease! Lets start looking at this disease as a whole jhd + hd = Huntington's Disease a childhood and adult disease alike kids die from it within 10 years and adults have about 25 years. It affects how you eat, sleep, think, move pretty much any ability you can think of it affects that. For more information please go either here: http://www.stanford.edu/group/ hopes/ or here: http://www.hdsa.org
Know someone with hd/jhd and need advice and support go to http://www.wearehd.org it's an amazing site I use it all the time. If your 9-29 you can join the NYA http://www.hdsa.org/nya/missio n.html it's an amazing group of people struggling with hd/jhd in their lives. How about going to the hdsc for a chat with others who can relate just go to http://www.thehdsc.org here's the chat times
Mondays at 3-5 pm Eastern 8-10 pm UK time
Wednesdays at 1-3 pm Eastern 6-8 pm UK time
Fridays at 5-7 pm Eastern 10pm-midnight UK time
----///-\\\----If you have ever felt
---|||---|||---Alone
---|||---|||---Hated
---|||---|||---Suicidal
----\\\-///---Apathetic
-----\\///----Depressed
-----///\-----or
----///\\\----just
---///--\\\---Feel in pain put this on your file and help someone out who feels that way. People need to know they are not alone
My little sister Karli, my dad, my older sister Erica, and myself all have Huntington's Disease Karli, Erica, and me have jhd and my dad has adult hd
... please go to HDSA.org and help! The message I want to spread is that children DO get this disease and it IS terminal. It's not only an adult disease! Anyone that's just a few months old and older CAN get this disease! Lets start looking at this disease as a whole jhd + hd = Huntington's Disease a childhood and adult disease alike kids die from it within 10 years and adults have about 25 years. It affects how you eat, sleep, think, move pretty much any ability you can think of it affects that. For more information please go either here: http://www.stanford.edu/group/ hopes/ or here: http://www.hdsa.org
Know someone with hd/jhd and need advice and support go to http://www.wearehd.org it's an amazing site I use it all the time. If your 9-29 you can join the NYA http://www.hdsa.org/nya/missio n.html it's an amazing group of people struggling with hd/jhd in their lives. How about going to the hdsc for a chat with others who can relate just go to http://www.thehdsc.org here's the chat times
Mondays at 3-5 pm Eastern 8-10 pm UK time
Wednesdays at 1-3 pm Eastern 6-8 pm UK time
Fridays at 5-7 pm Eastern 10pm-midnight UK time
----///-\\\----If you have ever felt
---|||---|||---Alone
---|||---|||---Hated
---|||---|||---Suicidal
----\\\-///---Apathetic
-----\\///----Depressed
-----///\-----or
----///\\\----just
---///--\\\---Feel in pain put this on your file and help someone out who feels that way. People need to know they are not alone
Country:
United States
Music:
FLЧLЄΛF Flyleafmusic.com , Evanescence, Simple Plan
Books:
A Child Called 'It'... The Bible... My Sisters Keeper, Wreck This Journal
Subscribers
(74)
I really feel for you and your family. Your little sister is an angel. Keep on fighting!!
i think you're all heroes - your videos are great and couldn't stop myself crying.. \
give Karli a big hug - she is an angel - i hope somebody will find a cure soon. who knows...
stay cool
Its strange coming on youtube to discover that Huntingtons is in other peoples families too, because when i was growing up my family received little support for Huntingtons, none of my friends knew what it was and i didn't know n e one else dealing with the disease.
Laura (from the Uk)
i hope you are ok
lots of love
me xxxxxxxx