Rare Disease Day, 29 Feb 2012

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Rare Disease Day, 29 Feb 2012 - Official Video

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by rarediseaseday 2 months ago

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3:15 Breathtaking Campaign Raises Awareness of Pulmonary Hypertension rarediseaseday 121 views 1 month ago Filmaker: Kurt Heyndrickx The "Breathtaking" campaign was launched on Rare Disease Day 2012, to raise awareness of pulmonary hypertension (PH) and, in particular, the rare...
3:07 Stand Together rarediseaseday 59 views 1 month ago My daughter has Gaucher Type III. I am an amateur rapper and I couldn't think of anything better than making a track for Rare Disease Day here in NZ to show my support. Hop...
5:08 II Torneo di calcio "Cittadinanzattiva" per V Giornata delle Malattie Rare ad Andria rarediseaseday 13 views 1 month ago La bellissima mattinata del 26 febbraio 2012 caratterizzata da un cielo limpido ha certamente contribuito alla riuscita delle iniziative svoltosi ad Andria in occasione del...
2:44 Multiple Hereditary Osteochondromatosis (MHO) rarediseaseday 650 views 2 months ago I made this video to help raise awareness for Rare Disease Day. I was born with Multiple Hereditary Osteochondromatosis (MHO) a rare genetic bone disorder. I hope one day...
1:23 Journée des maladies rares - 29 février 2012 - Vidéo officielle rarediseaseday 12,553 views 2 months ago Le 29 février 2012 est la cinquième journée internationale des Maladies Rares. Ce jour-là des centaines d'organisations de patients de plus de 50 pays organisent des activi...
1:23 Rare Disease Day, 29 Feb 2012 - Official Video rarediseaseday 52,612 views 2 months ago February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. "Soli...
6:23 Alle's Story rarediseaseday 142 views 2 months ago Our story of our daughter Alle Shea who was born with Type 2 Osteogenesis Imperfecta (OI) otherwise known as brittle bones.
0:57 4th National Rare Disease Day Amsterdam rarediseaseday 104 views 2 months ago On Saturday, February 25, 2012 is the fifth Rare Diseases Day at the Dolphinarium in Harderwijk. On this day we will hand out two Angel Awards to both a patient (represent...
2:16 You'll never walk alone with aHUS rarediseaseday 262 views 2 months ago I put together this mini video to show that you are not alone just because you have a rare disease. It also shows the links if you want to get in touch with with relevant p...
4:59 Rare Disease Day 2012 - Benjamin Aguallo rarediseaseday 406 views 2 months ago Video of Benjamin Aguallo as he deals with atypical HUS.

About Rare Disease Day, 29 Feb 2012

February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan "Rare but strong together".