Extraordinary Family By Charlotte France
The story of an Extraordinary Family! My video project for Salford University. The story of a 14 year old disabled child, that I care for, told by ...
CharlotteFrance19 • 418 views
-
1 week ago
Rarechromo
favorited
Clementine 1q21 deletion
Clementine was born with a rare genetic disorder called 1q21 deletion syndrome. This video was made to reach out to any others with this condition...
hakesl74 • 294 views
-
6 months ago
Rarechromo
liked
Advice on receiving grants and other financial support
A member of our freephone helpline outlines the various routes families with disabled children can take in order to receive extra financial assista...
cafamily • 344 views
...
Unique children with rare chromosome disorders
This video has been made in support of all children and young people affected by a rarer chromosome disorder and Unique, the chromosome disorder ne...
peoplewhoneedpeople • 2,695 views
-
1 year ago
Rarechromo
favorited
Cracking the Code: Understanding Rare Chromosome Disorders
This is a very basic video about Chromosome Disorders. It talks about what Chromosomes are, different types of disorders, and basic Q&A for familie...
lizzymcpherson • 6,615 views
-
1 year ago
Rarechromo
liked
Unique - Rare Chromosome Disorder Support Group
A short awareness-raising movie about rare chromosome disorders and Unique, made by our Family Support Officer Marion. Unique offers support and i...
605 views
About Unique - Rare Chromosome Disorder Support Group
Unique provides support and information to anyone affected by a rare chromosome disorder, their families, carers and the medical professionals working with them. Rare chromosome disorders are lifelong condisions affecting 1 in 200 live-born babies, often causing severe physical and learning disabilities. We want to raise awareness of these disorders to ensure all sufferers receive the care, support and respect they deserve.
Check out our website at: http://www.rarechromo.org
Unique provides support and information to anyone affected by a rare chromosome disorder, their families, carers and the medical professionals working with them. Rare chromosome disorders are lifelong condisions affecting 1 in 200 live-born babies...