Parent Project Muscular Dystrophy

by ParentProjectMD

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One Voice to End Duchenne

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by ParentProjectMD 1 year ago

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7:56 Muskeldehnungen bei Duchenne (Stretches for Duchenne - German) ParentProjectMD 113 views 3 weeks ago Stretches for Duchenne muscular dystrophy - Deutsch (German) View this video in English: http://www.youtube.com/watch?v=6eHLt3KAOtg Dieses Video zeigt eine Auswahl an Dehn...
59:24 DuchenneConnect Results - Webinar ParentProjectMD 698 views 1 month ago Have you ever wondered if anyone is examining all the data entered into DuchenneConnect? Would you like to hear the results from a study focusing on the registry data? If s...
58:43 AVI Clinical Trial Update Webinar ParentProjectMD 533 views 2 months ago Parent Project Muscular Dystrophy's AVI webinar covers a pre-data update on AVI BioPharma's Phase IIb study evaluating eteplirsen for the treatment of Duchenne patients wit...
1:00:09 ImagingDMD MRI Study (DuchenneConnect Webinar Series) ParentProjectMD 420 views 2 months ago Dr. Krista Vandenborne and Claudia Senesac, PT, PhD, PCS, both from the University of Florida, discuss the ImagingDMD Study. This study focuses on developing Magnetic Reson...
5:01 Duchenne With A Future: The Power To Live ParentProjectMD 3,877 views 4 months ago Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. Ongoing improvement...
1:08:47 Webinar: Prescription Drug User Fee Act (PDUFA) ParentProjectMD 281 views 4 months ago As PPMD heads into another year advocating in Washington, we encourage all members of our community to learn more about drug development and the FDA. Get Active! Actions...
1:56 "No Bad Days" - Hockey coach raises funds & awareness for Duchenne ParentProjectMD 370 views 4 months ago CBS Sports Network story featuring Rob Facca, father of Louie Facca (diagnosed with Duchenne muscular dystrophy) and Asst. Ice Hockey Coach at Western Michigan, on how his ...
7:02 Stretches for Duchenne Muscular Dystrophy - Updated 2012 ParentProjectMD 2,092 views 4 months ago This video walks you through different types of stretches for Duchenne muscular dystrophy. A regular stretching regime to keep muscles and tendons supple should be part of...
1:00:21 Biglycan Webinar ParentProjectMD 722 views 5 months ago Biglycan as a protein therapeutic for Duchenne Muscular Dystrophy Justin R. Fallon, Department of Neuroscience, Brown University
1:00:38 Webinar: Fat Embolism Syndrome Following Mild Trauma in Duchenne ParentProjectMD 938 views 6 months ago With growing concern in the Duchenne community regarding Fat Embolism Syndrone (FES) after a child falls or sustains what would normally be considered a minor injury, Paren...

About Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.

We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy.

We take a comprehensive approach in the fight against Duchenne—funding research, raising awarenes...