ME/CFS Awareness - My Story
Description:
I have formed this group to raise awareness of the affects of Myalgic Encephalomylitis on patients and their loved ones. The idea is to make a collection of pat
I have formed this group to raise awareness of the affects of Myalgic Encephalomylitis on patients and their loved ones. The idea is to make a collection of patient testimonies of how the illness affects their lives, and hopefully use it to get more media attention .
Myalgic Encephalomylitis is an illness that is still little understood and often denied by governments and insurance companies. It has been recognised by the World Health Organisation as a neurological disease for over 50 years. But in the 1980's the condition was renamed Chronic Fatigue Syndrome by the CDC. The new criteria that the CDC drew up, majored on one very non specific symptom - Fatigue. Soon other citeria were drawn up in various parts of the world, all of which majored on fatigue and lead the way for inclusion of people with psychiatric and other problems. Today ME/CFS is largely treated by governments and the medical profession as being a psychiatric condition, even though there are over a thousand peer reviewed papers that show very real physiological changes in the central nervous system of those with true ME/CFS. This psychologizing of ME/CFS has lead to the widespread development of inappropriate psychiatric treatments and caused more suffering and even abuse of patients suffering from ME/CFS.
It is my hope that this collection of testimoneie will help to rais awareness of our plight. Stories from ME/CFS patients those who have suffered under the hands of pschiatric treatments like GET and CBT would be of particular help. Please don't worry too much about the quality of your video. Your story ios more important than a slick video.
(more)
(less)
