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degradedmyasthenic

degradedmyasthenic

Joined: February 19, 2008

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Nightmare on Bronxdale Ave. - A Myasthenics Hell
The surreal environment I moved into, the threats, the hell I've been put through and how it's exacerbated my Myasthenia Gravis (MG - Grave Muscle Weakness, basically, chronic auto-immune muscle disorder, effecting voluntary muscles) See clips of my nasty wild neighbors parties, the grandma and kid up all night, how they destroy and urinate on my property, harass me, threaten my life, manipulate the police, even to the point of helping to incite Police abuse to a weakened disabled Myasthenic female who had already called and was begging for an ambulance!

I am sharing the most humiliating, degrading and traumatic experience of my life, in hopes of increasing awareness for Myasthenia Gravis.

Name: MaryAnn
Age: 43

me?..It's all on the blog...www.mgawareness.blogspo t.com

More about the Police Abuse videos... [Please view them in # order and read a little about Myasthenia Gravis to understand what is going on. I had been living in fear of 1F, spent the week prior trying to get an order of protection. Please follow the videos, start at #1. I was exhibiting exacerbated MG symptoms and asked for an ambulance early on. The morning should have ended there, not here 9 videos later]
It terrifies me to live in a world where I may fall, shake, be extremely weak, unable to speak, swallow, have double vision, or worse ... all because of my disease, Myasthenia Gravis and though I explain it, my symptoms may be perceived as "crazy" or "drunk" and I may be denied care. Anyone with a rare disability could die as a result of such ignorance!

That devastating reality set in when; I had to repeat the name of my disease, Myasthenia Gravis (MG) at least 18 times to the 911 operator; even more so while, I was being kicked and handcuffed because I could not get up at the officers request; as I clearly repeat to the 6 officers and 4 EMT/S workers the name of my disease at least 55 times AND call it MG at least 35 times; as I am repeatedly told to, "Be quiet." and,"Ssshhh" as I desperately try to explain my serious disease and symptoms; and while I begged for the officers to get my medical id card out of my bag; for an ambulance ... for somebody to understand my disease and what was happening to me!

The back of my medical alert card reads:
I have myasthenia gravis, a disease that can make me so weak that I may have difficulty standing or speaking clearly. In addition, I may have drooping eyelids, double vision, and even difficulty breathing. Sometimes these symptoms are mistaken for intoxication. If I appear to need help please contact my physician or hospital immediately. [& contact info]
The other card lists numerous drugs Myasthenics can not be administered.

June is MG awareness month! See myasthenia.org for more information.

Country: United States
Interests and Hobbies: Finding a new place to live...., Getting better!, Keeping my sense of humor!, My latest hobby is Packing!!!
Books: Beyond the Limits of Myasthenia Gravis
Website: http://www.mgawareness.blogspot.com

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