Emily: Friedreich's Ataxia

[girlchristian1]

Thank you for putting this on youtube, it offers others of us with young girls facing progressive ataxia info. God bless and keep your child. Christy - Amy's mom

[sheilacmartinez]

SE LO QUE CONLLEVA ESTE PROCESO, PUES HACEN A PENAS 4 AÑOS QUE ESTOY BUSCANDO UNA RESPUESTA PARA MI HIJO DE 15 AÑOS Y HACE A PENAS 1 1/2 AÑO LE DIAGNOSTICARON ATAXIA CEREBELOSA. UUUFFFF!!! NO TENGO PALABRAS...

[LMacMoTx]

Thanks for sharing.... usually we search for this type of stuff when we are trying to figure out our own child's issues. We know he has ataxia - we are still in the long phase of diagnosis... trying to determine why or which kind.

Emily is beautiful! Thanks for sharing your story.

[MsMermaid111]

Gracias por regalarnos tus sonrisas, un beso enorme desde España.

Thank you for your smile, a big kiss from Spain ;)

[capitangabriel]

wow that girs it is a beatiful angel!!

[jen1996288]

I can honestly say that this brought tears to my eyes.

I have FA too. I'm going on 15 years old, and so far I've been lucky enough to stay mobile so far. You're an inspiration to me. I don't know how many times I've just felt like there was no reason to smile anymore. But seeing you smile, it inspires me to go live my life and not care what anyone says. Thank you. x

[AbuMah3R]

to Emily : I hope you feel better and you success in your life .. i have the same problem , friedrich ataxia ...myname is ahmad ..i`m from israel .. 21 years old ... i hope that we talk together and share our feelings and hurts :)..you are wonderffull girl ... i wish you the best and i pray all time that the doctor make a treatment to us :) thank god for everything

[No1TaffWill]

I was with a young lady like yourself earlier today and like you she still smiles. She was having a bit of a bad day but we had a bit of a laugh as well. (which was nice). Our dogs adore each other, they play fight all day, it cheers us up. Love the music by the way.

[dobscha18]

Doença maldita!

[javulavien]

i have amarinesco sjogren syndrome its a metabomic myopathie only 6 famylies in the worls i am fithing angainst this deasease i have lost 3 childs but now i have a child don't stop the war and fight angainst this genetic deasease i am with you

[kezzi75]

Thank you. Your smile is an inspiration!!!!!

[Srtsantos1]

Você é linda, seu exemplo é brilhante sua alma é transparente... sua alegria é contagiante Que o Deus de Abrão Isac e Jacó abençõe você Hj e Sempre.

[holymackerel013]

You are a beautiful young lady, with a wonderful smile and you are an inspiration. I am a father of two young daughters and I am going to show them this video today so that they will know about you and be encouraged by your story.

Thank you so much.

[bofocafe2]

I have a rabbit too,  unfortunately also friedreich's ataxia

[skyler807]

Oh thank you so much for sharing, Emily is truly beautiful in EVERY single imaginable way possible.

[mrgenericbrand]

Damn, nature. YOU SCARY!!

[etherealbylar]

Emily you're beautiful =)

Keep smiling!

How fortunate you are, you have an AMAZING AND LOVELY FAMILY!

[wirklichdoof]

great video. You should see Kristen Stewart's portrayal of a girl living with Friedrich's Ataxia. It's amazing.

[lillysmom411]

This is inspirational. Two of My Aunts and Two of my uncles was diagnosed with this... they arnt with us anymore but FA will always have my donations!! God bless Emily with the strength my uncles and aunts showed threw it all!

[robine6able]

your emily reminds me of my daughter she was just diagnoised with fa. she doesnt let it get her down she keeps going she wears braces now and has a powerchair on the way tell emily to keep the smile angels r rejoicing may god bless you always

[CELALPCAD]

Hello Emily. İ am FA too. i am 37 and i love life... nice to see u smiling... u can see my videos if u search on youtube "celalcelik" Allah save you. keep smiling

[yusdragon88]

i hope you happy :D

[MyShellybean]

Hi Emily! My sister, Sherry, had FA. You are such an inspiration to others, even if you don't realize it. Keep that beautiful smile on your face and holdfast to all your dreams. God bless you and your family.

[sprudhviraj]

Im also friedreich's ataxia patient

Being happy gives us more strength and more confidence

so b brave and courageous

eat natural food

ill inform u if any cure dudes

u 2 help me plzzzz

[ShinaSouza]

Dios te bendiga niña, en el nombre del Señor y Salvador Jesucristo!

Estamos orando por todos ustedes, Jesucristo te da la salud!

[mikoman2008]

your r so sweet girl,god bless u

[bonsai2009france]

my daughter has the smile like yours emily and like you she is an inpiration and source of joy in our family! happy thoughts and determination will keep you going!

[alz123alz]

Yout are so beautiful and encouraging. My sister has FA. It didnt manifest itself until 10 years ago. One tip, it always important to keep the circulation good through exercise. Don't ever sleep with your hands behind your neck. It cuts off the circulation to the cerebellum. Dont wear tight belts, or tight socks. Chewing gum is also a good physical work out for the circulation going tothe brain. Exercise, Balance Diet, Exercise. God Bless you.

[MetabolicMx]

My cousins have FA too. We are making videos to raise awareness about Friedreich's Ataxia and showcase people living with it in a positive way. Check them out by searching YouTube The Hindsight Years for the first two of our ten part series. We are looking for people to interview so please get in touch!

[ribeja15]

Emily u have the most beautiful simle in the world, god bless u

[sherebaby]

keep smiling i have several family members diagnosed with FA and we are fighters as well.

[jetblackstarsx]

i have FA too. i will be emailing shortly!

-noelle

[gappie26384]

I have this disease also. When I got diagnosticed I was 9 now I am 24 and over three months 25!! In Holland I'm in a test fopr Idebenone. Maybe a tip?My brother died of FA, he was only 19 years old....

Marloes from Holland

[SprinterGirl18]

Your just a pretty girl.

My dad was diagnosed with Friedreich's Ataxia. When he was in college, and now he is 48 years old and still living well.

Thanks for posting this video :)

[muyfelices]

It does my heart good to see someone live life to the fullest, despite of FA. My little girl Mia(7) was diagnosed last week. It brings tears of joy to know that life goes on....be happy......

[themiff]

Take a look at my documentaries on living with Ataxia....The Hindsight Years. Specifically Debra ter Borg. We need more examples like this to show that FA does not mean that your life is over...only if you choose that attitude.

[luzziernaga]

Beautifull Emily, i don´t speak English well, but if I only know is..LOVE LOVE LOVE is the only way.. and see the miracle of the life all days.

Kisses!

My name in Luciana, from Argentina ;)

[wrestlingk14]

i have FA 2, i would realy like to talk to emily.

[FriedreichsGirl]

I have Friedreich's Ataxia too, I was diagnosed when I was 8. I am now 17, I would love to hear from you, I will message you my email. :)

[acheese9]

Aw, so beautful and cute! You've got a great smile, so keep up the grinning in life! Life can get you way down, but faith,hope, and dreams can raise everything to a new dimension. Bravo!