before and after brain surgery for movement disorder

[Wurstvogelify]

"And I'm playing a typing game...because I can." That made me smile, such a small sentence with so much triumph and happiness behind it. And even though I don't know you, it made me feel very glad for you (^.^) Best wishes!

[betatestersrule08]

I'm glad your doing well.......

[andregyn62]

Congratulations! I wish all the happiness in the world for you, you very pretty! thousand kisses!!!!

[shareyourfood]

Awww this made me cry! I'm so happy for you, you're such a lovely beautiful happy girl :)

[canadianlover2007]

Congrats having the DBS ,I assume, I too had it done in 2004. I only wished more were able to have this done. So they too can be free! 8-)

[mrbluenun]

Hi chloew90,

I am so pleased your surgery seems to have helped.

take care,

mrbluenun

[mazfraz83]

Chloe, your story inspires and gives hope to so many individuals who continue to have symptoms of myclonic dystonia similiar to yours. My son has been diagnosed with myclonic dystonia. You had your surgery at the Mayo Clinic in Rochester. Could you share how we could fasttrack the diagnosis and surgery process? Medications (clonazepam, botox,etc) have not helped. Thank you.

[AndrewKH85]

Single? ;)

[cassiedickey]

i am glad that she is doing well

[jessicaanngerardi]

That is awesome! We are going to the neurosurgeon today to discuss this surgery for my father who has a TBI. He has tremors like a Parkinson's patient. His life would be so much better is he could stop shaking.

[norbo1000]

hey I am confused coz in the video it is said several weeks before surgery and why didn't u trim your hair and if u did hw could it be so long in several weeks .wel its only like a demonstration

[brainzucka]

iam very happy for you!!!!!! :-)

[SiannaPhoenix]

wow, you're doing so much better, that's amazing. Must be like a wait off you're shoulders! I'm happy for you lol

[shazzyblah]

Congratulations on such a successful treatment, Im so happy for you :)

[EndlyRara]

wow...so u're cured...i see so many difference from before and after... n when i saw the "after" part, i just can say "wow".... im so sad if a pretty girl like u hav to bear that kind of pain, but good thing that u're cured... im just...im really happy to see that, even though im just watching from afar... congratulations Chloe...God bless u ('_~)

[LauraLea38]

Awesome!!! God has healed you!!! Praise God!

[xxSchuterxx]

I HOPE YOU FEEL BETTER GOOD LOOK

[gweedo208]

I don't know how i got on this topic of video's but i came across your video and i just gotta say what a kick ass story. It's amazing to me that we have the technology and know how to fix problems in the complex networking of the brain. I'm very happy for you, your very beautiful and i hope you have a wonderful life.

[ven20170]

Congratulations!!! Thanks for sharing your journey. I am happy for you and God bless you.

[inagod]

im very happy for you,being the father of 3 girls,your mom and dad must be thrilled,good luck with your life,its a great big world out there,Godspeed.

[syldecas]

how can a person with epelipsy drive? all my doctors told me i could not drive in every city

[shaynapulley]

I'm so happy for you!

[rohkanempire]

you ar so beautiful!! i just dnt knw wht to say!

[BeeZee2]

How wonderful!.. You're an inspiration to us all! Congratulations, and thanks for sharing your journey!!

[icaleod]

Hey Chloe, hope you're doing well and enjoying university! Thanks for posting your vids!

[eyedea81]

whats the song at the end?

[dasey22001]

My daughter has Myoclonic Dystonia which is a also a movement disorder that causes jerking and spasms of all the muscles of the body.Jessica's symptoms started when she was about 12 with shaking of her right hand with use. The tremors moved to all extremities and then her torso and head. It took many doctors and years to receive a diagnosis. She has suffered with intense muscle spasms and cramps that can be one area to the entire body at one time. It is very painful and exhausting.

[JeniferDenise]

Hi dasey22001, I'm Chloe's mom. Chloe is doing very well these days, reducing her meds, driving again, and studying in university. I would be happy to hear more about Jessica. What treatments is she getting? Are they helping?

[omglikewoahitssydney]

That is simply amazing! I'm so happy for you!! :]

[laralovesmusic1]

I am sooo happy for you! =)

[flareman666]

Congrats Chloe. Glad you are feeling better.

[c10udd]

yeah ure alright! awsome results¡ but i have a question, when was the first time u had those involuntary movements???

[chloew90]

it started when I was 17

[pitpalak]

@chloew90 ok u answeared my question, but did u had an accident or they came suddently?

[biggyfofilly]

WOOHOOOOO!!!

thats how you do it girl :D!!!

[askerobich]

Men!!! I am glad that surgery was a succes.

[kaazoom]

I am so pleased the surgery went so well for you Chloe and you can get on with your life without the movement disorder. it must have been very hard to deal with at such a young age. I have a movement disorder similar to yours but I didn't get mine until I was in my 40s. Mine affects my upper body most. I know how uncomfortable it can be when you body does things on it's own!

I am sure your family are very proud of you.

[benjaminpott]

that's simply amazing what medical surgeons can do!

[JeniferDenise]

I just want to brag on Chloe a little (moms do that). She is an honors linguistics student at a major university, and she has spent the summer giving specialized visual exams for an ophthalmologist. In spite of continued low energy levels, she is doing great!

[stracinsrt4]

Did the movements occur while you were trying to sleep? I think that would have driven me nuts.

[chloew90]

The movements got worse in the evening, and I was still jerking when I would try to fall asleep. But they would start to get slower and calmer as I relaxed, and I guess eventually I would fall asleep between jerks, and once I was asleep they would be gone. Some nights when they were bad I would have trouble sleeping, but it could just as well have been anxiety, which as well as keeping me awake can make the jerks worse. But I really needed sleep; all that jerking was like a constant workout.

[mindygrahamkrauth]

hey chloe...! i am an illinois girl too!

do you remember the name of the procedure you had ?

i am only asking because i work in surgery, and find your outcome to be amazing.

[chloew90]

Thanks! The surgery this video is talking about is a resection of a heterotopic nodule in the right lateral ventricle. Before that I had a partial right parietal resection. I'm not sure if I said the names of those right. In each surgery, they really only took out a tiny bit.

[peak199]

I am happy your surgery hepled you!you are amazing!

[heartnsoul40]

@chloew90 its called DBS deep brain stimulation i have dytonia since 12 im 41 with shakes and jerks,i will also get DBS in august

[Kalevala87]

@chloew90 You got the names right ;) do you remember if you noticed any side effects after your right parietal resection, such as sensory alterations or visual problems of any kind? Just curious.

[hahadaamn]

omg im crying.. god bless baby girl.

[123iheartfish321]

omigod

this might sound weird, but when that song started i almost started crying!

congratulations!!

[kyotoblade]

You are such a pretty girl. I'm happy to know you have overcome this difficult disorder.

[acxel91]

excellent video...

[overclockedamd123]

What a beautiful girl. Hope the best for you.

[BallieBallBunny]

I am happy for you. :) I just got tinnitus and browsing for answer.

[SaxInThaCity]

That is Amazing!

[buckyrox2008]

Praise God!

[kyl75]

im glad the sergery helped you out

you look like your better

[gawzrocks]

So were you born with the involuntary movement?

[chloew90]

no, it started when I was 17

[gawzrocks]

Well, I don't know you, but I'm glad the operations were able to help you out significantly.

[Travino]

I HOPE YOU OLY GET BETTER AND BETTER!

[PossumsHateCheese]

So inspiring!

no joke

this is very nice

[prelan]

i bet she would miss the jerk... it would be like changing her whole life... correct me if i'm wrong.

[JeniferDenise]

Hi prelan. While it's true that positive changes can be stressful, most people with illnesses and disabilities function much better if they can be well. (In Chloe's case, the movement disorder only started a few months before the surgery.)

[prelan]

really, i didn't know that, sorry.

[JeniferDenise]

No problem. Each case is unique, which makes them challenging to interpret. Many people do have myoclonus for years. (BTW, I'm Chloe's mom.)

[prelan]

oh right, cool. She's lovely. I had myclonus at the time I wrote the comment, it was a brief bout due to chemical poisoning. Hope ya'll are doin' good

[JeniferDenise]

Thank you, prelan. I'm glad you're better.

[triangleround]

I'm glad that you're better

[LOCInumber1fan]

I have cervical dystonia. People came up to me and asked me, "What's wrong with you?" People are so rude! My dystonia is better now because of getting Botox. I don't know what I would do without it. I have other types of dystonia besides cervical dystonia. I have spasms in my stomach and my left foot & I have a limp. I think my stuttering was caused by dystonia as well.

chloew90 I'm glad your surgery went well & I'm happy to see that you can get back to normal activities without the spasms. :-)

[flarenixie]

Im studying movement disorders as part of my physiotherapy degree and your videos help to put them into context. Im happy that your doing so well, thank you for sharing these videos.

[syidan86]

chloe,thanks so much for sharing this video..this is very useful informative video for learning.

[i8bean]

chloe, thanks for sharing that video.. i am doing a presentation on myoclonus and was wondering what type of brain surgery helped you ? any addt'l info you can provide ? thanks

[chloew90]

Of course, I would be glad to give you information for your presentation. I'm sending you a private message.

[theartofbone]

Chloe, thanks for sharing this with us. I learned a lot form it for my study purposes and I wish you and the person holding the camera + your family the best. Your story even reminded me that God works in everyone in a unique way. Cheers.

[Melbourne3099]

So glad that worked out for you.

All the best.

[buxton6]

my daughter has a movement disorder also, did you always have it or did it just start? We live in Il also would love to talk with your parnets. We have also been to mayo but still not for sure the name. Were your movements all the time or off and on? So HAPPY for you that the surgury worked!!

[chloew90]

They were all the time except when I was sleeping. Even though it was caused by a birth defect, the movements didn't start until I was 17. If you want, you can send me a private message with your email address and any questions and I can put you in touch with my parents.

[chloew90]

Well my brain condition is different from Tourette's, but if you really want to find some kind of surgery, you should do some research. I recommend contacting someone at the Mayo Clinic in Rochester Minnesota because they have a very good movement disorder clinic.  I have heard of brain surgery for Tourette's, but it would be kind-of different.

[JonahTorn]

I have Tourettes. Would this help me?

[Bob7k]

You seem so smooth, did the surgery completly remove the movements?

[chloew90]

not 100% all the time, but as long as I get enough sleep, it's not noticeable.

[callie143]

How wonderful to see the progress that you have made ! Isn't it marvelous how far medical science has come?

Congratulations!

[myodana]

it's wonderful to see your progress. all the best.

[dancinforchrist]

aaaawe, I miss you chloe! I'm so glad to see you're doing better!

[Petermolly02]

Way to go Chloe! You look amazing! Keep up the good work!

Auntie Molly