woman with huntington's chorea part (1 of 2)

[distractionxx]

very interesting video thanks

[alexasmithy]

really informative and interesting

[SuperDogbrown]

great video thanks

[thejameskan]

some really good stuff here

[shellybirdy]

some great inforamtion here thanks

[imjessij]

Thank you so much for letting us into your lives. I have a test tomorrow morning of huntingdon's. This helps me, as future nurse, to know there is not a diseased person, but a person with a disease.

[polloloco3]

Thank you for the brave post. When studying these diseases we often forget about the people that are effected by them, and more importantly their family. Take care!

[MyStephLove]

Autoimmune disorders...this is a nasty disease, once again thank you for posting this.

[tinkydinkyful]

Lisa, improvements are made steadily in the treatment of HD. By the time you are old enough to be stricken by it, research will be even farther along. Be encouraged, child.

[TheMuziqGuru]

this is soooo sad... I will pray for her... I am a med student i know what this disease is like

[bornnorth]

Don't give up. I take care of someone with HC - they are on Xenazine and Namenda, and some other things. And it makes a big difference. She walks without the dancing, and no longer has the jerking movements. She just tires easily. But she is happy with the results. And in the future, for your little ones - things will be better.

[godsendify]

i wish you all the best for you and your family and hopefully your twins and maybe the other girl is your daughter too, do not have the same genetic defect.

[welwitcha2000]

This time of compassion and pity of love in the next

Own decadence

I find this indulgence, this provision to help this defense reciprocal

I think in all this a symptom of degenerative disease of the peoples of the west,

Our time sulfur physiological senility and even a moral equalizer with dementia and mentally insane.

Me big me that despises everything that sulfur, anybody who is sick and degenerate my lack of feeling I can say, "perish the parasites and their gods and devils quick

[Kalevala87]

All these blessings from people's deities kinda beg the question of where people's gods were when such conditions originated in the first place. Less blessing and more funding research, please.

[gizemsena]

@Kalevala87 it might be true that even if the whole world prayed for her she won't be healed.still i'm a very religious person.i think it's just so naive to believe that god is always our guarder.if life was just nice and beautiful then we would not value it.we have to see the bad side of life to value the good one.you should be glad that you even live.maybe we should not always complain about the things we lost like our health.we should be grateful for everything we ever got.life is a big test

[gizemsena]

@gizemsena i forgot to say that this is just my opinion =) i don't want to attack you or something like that ;)

[ozyush]

Wish you all the best

[nana371972]

My whole family has what is know as DRPLA, which like Huntington has the same symptoms and progress the same. My mom, grandmom and two aunts died from it. My two sisters and two brothers all have it, unlike the lady in the clip, the symptoms have progressed from where she is. I take care of them, its hard, but I think I have a calling from GOD to do it, since I'm the only one not affected with this disease. Pray for them and me.

[shinelectra]

@nana371972 Dont worry, everything will be okay, believe& pray to God! that's all you can do, and God will listen to you

[x2thay]

@shinelectra God? Don't be stupid. If god could do something, don't you think he'd just do it? Oh you imagine he wants to hear some prayers first? Idiot.

[PhazonInfuser]

@shinelectra  Lying to people like that is horrible!

[ba7itha]

good bless u and ur family,

dont loss ur hope.. sooner or later, a curable treatment will come up

wish u all all the best

[steviefreak69]

May God bless you and your family. My mom passed away from HD so I know all to well what you're going through. It is wonderful that you were able to do this for your daughters before any further progression. Be strong for your girls and your wife. Blessings to you all.

[shalom1973]

sad and inspiring at the same time.........

[keenandwhat009]

It's sad that the her little girl didn't want to kiss her goodbye, too young to understand.

[gumbyh20]

I am so sorry, I know how hard it is...my husband was diagnosed with HD in Sept. 07. God bless you and your family I will pray for you.

[WonderfulGarbage]

Reminds me of my Mom...

Stay strong, guys <3

[gorillashop]

God bless your family. I wish your family all the best

[rascal711]

You show a great deal of courage to post this video with so many juvenile posters on here. I hope a cure is found soon or at least better methods to moderate symptoms and prolong life. With my best wishes, take care.

[dinnerplatejack]

Thank you for posting this. As a medical student, it's great to see what some of these symptoms look like and, of course, to be reminded of the human element.

All the best to you and your family.

[annamaria96]

May God bless Your wife and give You both stregth to fight the desease

[kchangez]

thanks for posting this, your video also helped me with my studies. God bless!

[Johnnyjueves]

The people doing the interview are really loud and annoying.

[symethis]

you've a verry beautiful wife mister , take good care of her

ps : your video helped me a lot in my studies thank you

[Chomel7]

I first heard of HD after reading 'Could I have this Dance?' by Harry Kraus MD. This is book 1 of the Claire McCall series.

[JoeFrisbee1]

I have been researching Huntington's Disease for about a month now, These youtube videos really put the disease into perspective though May god bless you all who tested positive for this disease. I hope we can make progress on a cure.

. I 'm running the Rock N Roll marathon to help fight HD. Please check out my website and lets find a cure together.

firstgiving . com /JoeFrisbee

[roxychik8228]

Hi, My names Lisa and im 17 years old.. I have just been tested positive for huntingtons. Im so scared about whats going to happen

[KismetDividan]

What is your CAG repeat? You might not have to worry about it for a long, long time. my thoughts will be with you. my son has it. it's pretty scary, but be strong.

[travisandjill]

I am so sorry, have faith! Use this time to prepare and KNOW what you believe in. I will pray for you (HUGS).

[sangall]

god i'm so sorry, i send you a virtual hug :)

[leiilllyyyyy]

im so sorry, please stay strong<3

[kiashamed]

God bless you. Please stay strong.

[sophminx]

@roxychik8228 i wish you all the best and i know it must be really hard for you right now. But we're in a great age and huntingtons is being heavily researched. Doctors can give you medication to make the symptoms less noticable, i really wish you all the best and feel free to add me if you ever want to talk, i really am here for you xxx

[TheVolleyballgurl102]

@roxychik8228 IM only 13.... and 3 generations have it. what are yuour symptons? like how do u no u have it other than the dr? are theyre things u can tell?

[eishiba10]

@TheVolleyballgurl102 most symptoms start with awkward motions and slurred speech and being extremely forgetful. im 24 with a mom with huntingtons and usually have a hard time remembering where i put things anymore.

[leeginno1]

@roxychik8228 Hi Lisa, my name is Lee from U.K. I am an ex nurse who looked after someone with Huntingtons. If you would like to get in touch for any reason, do so. I am here for you. Be brave.

[dieOllevonNebenan]

@roxychik8228 i wosh you all the best. live your live as long as possible. you're young :D my thoughts are with you. eileen from germany

[shinelectra]

@roxychik8228 you'll be okay, Dont worry and i will pray for you everyday!

[MissAsiaBee]

@roxychik8228 you will be okay !! i am praying for you

[theguywholaughed]

@roxychik8228 if you take something called tetrabenazine, it reduces the severity of the disease

[tayabafiza]

@roxychik8228

im really sorry to hear that... its terrifying learning that something will happen to you but everyone should live everyday like its their last because you never know whats around the corner! my prayers are with you. im a biomedical science student and watching this makes me want to learn more about it and makes me want to find a cure/treatment for it soo bad!!! my heart goes out to all those people who have family affected by this!

[DeathofmeIknow]

@roxychik8228 I'm 19 and I have the HD...I know how you feel. alienated, scared, bleak out look on life...

[Cyrus0305]

@roxychik8228 I am so sorry Roxy for the bad news, I know this is a really late reply but I will pray for you and I hope you have the strength to fight this disease.

[LoveMeFLAWSandAll]

It runs in my fathers family and I am so scared to get tested, It gives me hope that people are starting to know about it!

[Kilian8496]

Thanks for this video. Diseases like Chorea Huntington are so fare for a lot of peoples. Videos like this could short the distance and raise the respect for the people and their family.

I had a great respect with you and you're wife and wish you all the best and a lot of power for your future.

[madrywallmike10]

Your Family is our Family.

Thank you for makeing the Videos.

One day I will learn how to make videos so you guys can meet my boys and Grandkids.

Love Always

Mike & Raima

[corsoluvs]

I'm glad you posted this video. I agree that it will be a nice video to have later. I wish I had video of my dad. He also had HD. You are a strong family - I am sending all of my good vibes your way!

[darylcarolynpopp]

I like your video. I wish I had video of my mother, all I have is pictures, I never got to see her. I think your children will really appreciate the video diary you are making! God Bless!