Added: 2 years ago
From: SarahJean1976
Views: 804
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  • hi Sarah...my sister has Cystic Fibrosis!!!! it sucks she has sutomotus so she uses tobi and she uses pulmozyme...and she does it 45 minutes a day :) hope you are doing well............. and my sister goes to Stanford :) You are SO pretty too :)

  • I really never liked clapping. We used to call it beat up. The vest gave me the freedom to do it on my own when and where I wanted. I've done the vest in So many places that i couldn't have done with clapping. Like the back seat of a car rolling down the highway, in a race car trailer, in the back of a truck at a race track, dorm rooms, and hotel rooms to name a few.

  • I absolutely agree. As a child with CF I was clapped, I loved too loved it. I think the clapping gets places the vest doesn't, also, clapping can be positional. Your child can be laying down, or even go upside down, you can't do that with a vest. Now, I am 21, and I use the vest at home because it is more practical. But when I go into the hospital, I prefer they do the clapping over the vest.

  • That is a hard age... We did mine first thing in the morning and then right before bed... We would clap and then read (they bribed me with reading me a book) I used to lay across her legs on my side and then roll from side to side to front... and we would sing!!! I liked how it made me sound...

  • Lovely info. we're working on getting the vest now, however, I haven't a clue how long it will take to get. Any advice on clapping a toddler? LOL hes almost 2 and will NOT sit still for me to do any clapping other than on his back!

  • Oh yes, I remember the good ol days of clapping. One time when I was with my mom in a store I told her "hey mom, you havent beat me today" hahaha it embarrassed her to say the least. Ive had my vest goin on 11 years now but I do miss the clapping.

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