PLEASE look into sinemet. It's a Carbidopa/levodopa supplement that has helped me live like I virtually do not have dystonia at all. I don't know if you would be responsive, but please look into it.
Hi, there aren't any update videos in a while of Hope, I hope she is doing better, and the meds they have her on now are working to help her condition. She truely is a gorgeous baby. You are truely blessed to have such a wonderful daughter. Godbless your family
PLEASE look into sinemet. It's a Carbidopa/levodopa supplement that has helped me live like I virtually do not have dystonia at all. I don't know if you would be responsive, but please look into it.
gothrottle 5 months ago
Hi, there aren't any update videos in a while of Hope, I hope she is doing better, and the meds they have her on now are working to help her condition. She truely is a gorgeous baby. You are truely blessed to have such a wonderful daughter. Godbless your family
Pam4Rob 1 year ago
Anat Baniel lessons
rubylove333 1 year ago
precious from one mother to another i offer my prayer to you and baby Hope
unknownfriend7 1 year ago
aw...she's so cute :(
shtfckdatho 2 years ago
Hi,
I will look into that and will forward that to one of Hopes doctors.
At the moment it looks like, that she has a rare / new disorder.
She is now for a few weeks with 5 other children ( worldwide ) in a dna-program.
Now we wait for a response from the doctors, that can take a while.
Taragashi 2 years ago
Some of your other videos look like possibly mitochondria disorder???
SJGP123 2 years ago